Support Groups

Patient Transport Service (PTS NWAS)

https://www.nwas.nhs.uk/services/patient-transport-service-pts/

Patient Transport Service (PTS) is a non-emergency service for people who may need special support getting to and from their healthcare appointments. We provide the service for patients in Cumbria, Lancashire, Greater Manchester and Merseyside.

North West Ambulance Service
Ladybridge Hall HQ
Chorley New Road
Bolton
BL1 5DD

0345 112 0999

Transport for Sick Children

https://transportforsickchildren.org/

Transport for Sick Children is charity with an incredible team of volunteers who give up their time and use their own cars to take accompanied children to hospital and clinic appointments.

Transport For Sick Children
Suite 338 Stockport Business & Innovation Centre Broadstone Mill Broadstone Road Stockport SK5 7DL

0161 443 4122

to@transportforsickchildren.org

Well Child

https://www.wellchild.org.uk/

WellChild is the national UK children's charity making it possible for children and young people with exceptional health needs to be cared for at home instead of hospital, wherever possible.

Office 23, Sunningend Business Centre
22 Lansdown Industrial Estate
Cheltenham
Gloucestershire
GL51 8PL

01242 530007

info@wellchild.org.uk

Rainbow Trust Children's Charity

https://www.rainbowtrust.org.uk/

Rainbow Trust Children’s Charity supports families who have a child aged 0-18 years with a life-threatening or terminal illness.

Rainbow Trust Children's Charity,
Cassini Court,
Randalls Way,
Leatherhead,
Surrey,
KT22 7TW

01372 363438

Children's Heart Association

https://heartchild.info/web/

The Children’s Heart Association is our local heart charity supporting families, children and adults with congenital heart disease in the North West. They provide opportunities throughout the year to meet up with other families and offer peer to peer support.  They support the work of both our paediatric and adult services.

23 Hesketh Drive,
Heswall,
Wirral,
CH60 5SP

01706 221988

information@heartchild.info

Tiny Tickers

https://www.tinytickers.org/contact-us/

A national charity helping improve the detection, care and treatment of babies with serious heart conditions and offering information and support to parents.

Write to us at:
Tiny Tickers, PO Box 369, Leeds LS26 1FR

0300 102 1508

Scope Community Engagement

https://www.scope.org.uk/

Scope's Community Engagement project gives disable people, their families and unpaid carers the opportunity to talk about their communities and the issues they face. Click here for further information

Jo Palmer

07776 650893

johanne.palmer@scope.org.uk

North West Adult Congenital Heart (NWACH Support Group)

https://www.facebook.com/groups/MACHnetwork?form=MY01SV&OCID=MY01SV

The North West Adult Congenital Heart Support Group has a private Facebook group that is run by the ACHD specialist nurses. It is a safe place to meet other adults with congenital heart disease to share stories and offer each other support. Regular updates are provided by the specialist ACHD team via remote meetings and Facebook live events.

Join our Facebook Group - see link under our heading.
For further information contact the Helpline on 0151 254 3333

Team 1C

https://www.team1c.org/

Team 1C are a big cardiac family providing peer to peer support for families going through the same heart journey with their children.

Halton & St Helens VCA
2nd Floor
The Beacon Building
College Street
St Helens
WA10 6DB

admin@team1c.org

Transport Services - Royal Voluntary Services

https://tinyurl.com/2shwnaxb

Community transport help for to and from hospital appointments etc

Contact form available at the bottom of the web link page

Lagans Foundation

https://lagans.org.uk/

Aims to physically help support families who have babies and children up to 5 years old, diagnosed with heart defects OR feeding difficulties. Lagan’s Foundation’s purpose is to provide unique at home and in hospital care to support parents in their caring role.

Lagan’s Foundation
Unit 16
Flexspace
Manchester Road,
Bolton,
BL3 2NZ

01204 800300

info@lagans.org.uk

The Somerville Foundation

https://www.thesf.org.uk/

Supporting young people and adults born with a heart condition

The Somerville Foundation, Saracens House, 25 St Margaret's Green, Ipswich, IP4 2BN

0800 854759

helpline@thesf.org.uk

Turn2us

https://www.turn2us.org.uk/

Turn to us is a national charity that helps people in financial hardship gain access to welfare benefits, charitable grants and support services.

0808 802 2000

Marfan Trust

http://www.marfantrust.org/

Improve the treatment of patients and increase awareness of Marfan’s disease.

Charity Administrator, Marfan Trust, Genetics Research Centre, Molecular and Clinical Sciences Research Institute, St. George’s, University of London, Jenner Wing, Cranmer Terrace, London SW17 0RE

020 8725 5248

marfantrust@sgul.ac.uk

Heartline

https://www.heartline.org.uk/

Heartline supports children with heart disorders and their families, whatever the condition, wherever it is treated.

033 0022 4466

intouch@heartline.org.uk

Cardiomyopathy UK

https://www.cardiomyopathy.org/

Specialist national charity for people affected by cardiomyopathy. We provide support and information services, work to raise awareness of the condition, campaign for better access to quality treatment and promote research.

Unit 10, Chiltern Court,
Asheridge Road,
Chesham, Bucks.
HP5 2PX

0800 018 1024

contact@cardiomyopathy.org

Cardiac Risk in the Young

https://www.c-r-y.org.uk/

Preventing young sudden cardiac deaths through awareness, screening and research, and supporting affected families.

Unit 1140B The Axis Centre,
Cleeve Road,
Leatherhead,
KT22 7RD

01737 363222

cry@c-r-y.org.uk

British Heart Foundation

https://www.bhf.org.uk/

We are the largest independent funder of research into heart and circulatory diseases, keeping hearts beating and blood flowing.

Greater London House,
180 Hampstead Road,
London,
NW1 7AW

0300 330 3311

heretohelp@bhf.org.uk

STARS

http://www.heartrhythmalliance.org/stars/uk

Working together with individuals, families and medical professionals to offer support and information on syncope and reflex anoxic seizures (RAS)

STARS, Unit 6B, Essex House,
Cromwell Business Park,
Chipping Norton,
OX7 5SR

01789 867 503

info@stars.org.uk

AF Association

http://www.heartrhythmalliance.org/afa/uk/

Working to provide information, support and access to established, new or innovative treatments for Atrial Fibrillation (AF)

AF Association, Unit 6B,
Essex House,
Cromwell Business Park,
Chipping Norton,
OX7 5SR

01789 867 502

info@afa.org.uk

Arrhythmia Alliance

http://www.heartrhythmalliance.org/aa/uk/

Working together to improve the diagnosis, treatment and quality of life for all those affected by arrhythmias

Arrhythmia Alliance Unit 6B,
Essex House,
Cromwell Business Park,
Chipping Norton,
OX7 5SR

+44 (0)1789 867 501

info@heartrhythmalliance.org

Downs Heart Group

https://dhg.org.uk/

A charity offering support and information relating to heart conditions associated with Down's Syndrome

Down's Heart Group,
PO Box 4260,
Dunstable,
Beds,
LU6 2ZT

0300 102 1644

info@dhg.org.uk

Max Appeal

http://www.maxappeal.org.uk/

Supporting families affected by 22q11 Deletion Syndrome and 22q11 duplication.

13 Meriden Avenue,
Wollaston,
Stourbridge,
DY8 4QN

0300 999 2211

info@maxappeal.org.uk

Little Hearts Matter

https://www.lhm.org.uk/

Offers support and information for families with children/babies with single ventricle heart conditions

11 Greenfield Crescent,
Edgbaston,
Birmingham,
B15 3AU

0121 455 8982

info@lhm.org.uk

Children’s Heart Federation

http://www.chfed.org.uk/

National children’s heart charity working to meet the needs of children and young people with congenital and acquired heart conditions and their families

Childrens Heart Federation, Suite 12, The Centre, Lakes Industrial Park, Braintree, CM7 3RU

0300 561 0065

info@chfed.org.uk

Contact

https://contact.org.uk/

The UK charity for families with disabled children. Contact provides information and guidance, brings families together to support each other, and helps families campaign for change

209-211,
City Road,
LONDON,
EC1V IJN

020 7608 8700

info@contact.org.uk

Antenatal Results and Choices

https://www.arc-uk.org/

Information and support to parents throughout antenatal testing, diagnosis and choices

345 City Road,
London,
EC1V 1LR

020 7713 7356

info@arc-uk.org