If a diagnosis of Congenital Heart Disease is made your Consultant will explain the details of the condition and give you verbal and written information about it. The consultant will also discuss the number of procedures/operations that might be required as well as the long term outlook and associated risks to the baby’s health.
The consultant will outline the options available at this stage of pregnancy, including discussing very difficult issues such as termination of pregnancy or comfort (palliative) care if the baby is unlikely to survive the pregnancy or it is felt no therapeutic option, might be possible after birth.
The prognosis and management for different heart conditions can vary widely and it may be different in other parts of the world. We suggest you limit your internet browsing to reputable sites where the information can be trusted. The British Heart Foundation and the Childrens Heart Federation have a series of heart specific booklets which could help you understand your baby’s condition better. See Conditions and Support Groups section for further information.