Support Groups

Team 1C

https://alderhey.nhs.uk/index.php?cID=2075

A Group of Cardiac patients, families, staff and supporters - raising money to help others, created and led by Claire Cathcart.

Alder Hey Children's NHS Foundation Trust,
Eaton Road,
Liverpool,
L12 2AP

07539015447

Starsandstripesball@gmail.com

Lagans Foundation

https://lagans.org.uk/

Aims to physically help support families who have babies and children up to 5 years old, diagnosed with heart defects OR feeding difficulties. Lagan’s Foundation’s purpose is to provide unique at home and in hospital care to support parents in their caring role.

Lagan’s Foundation
Unit 16
Flexspace
Manchester Road,
Bolton,
BL3 2NZ

01204 800300

info@lagans.org.uk

The Somerville Foundation

https://www.thesf.org.uk/

Supporting young people and adults born with a heart condition

The Somerville Foundation, Saracens House, 25 St Margaret's Green, Ipswich, IP4 2BN

0800 854759

helpline@thesf.org.uk

Turn2us

https://www.turn2us.org.uk/

Turn to us is a national charity that helps people in financial hardship gain access to welfare benefits, charitable grants and support services.

0808 802 2000

Marfan Trust

http://www.marfantrust.org/

Improve the treatment of patients and increase awareness of Marfan’s disease.

Charity Administrator, Marfan Trust, Genetics Research Centre, Molecular and Clinical Sciences Research Institute, St. George’s, University of London, Jenner Wing, Cranmer Terrace, London SW17 0RE

020 8725 5248

marfantrust@sgul.ac.uk

Heartline

https://www.heartline.org.uk/

Heartline supports children with heart disorders and their families, whatever the condition, wherever it is treated.

033 0022 4466

intouch@heartline.org.uk

Cardiomyopathy UK

https://www.cardiomyopathy.org/

Specialist national charity for people affected by cardiomyopathy. We provide support and information services, work to raise awareness of the condition, campaign for better access to quality treatment and promote research.

Unit 10, Chiltern Court,
Asheridge Road,
Chesham, Bucks.
HP5 2PX

0800 018 1024

contact@cardiomyopathy.org

Cardiac Risk in the Young

https://www.c-r-y.org.uk/

Preventing young sudden cardiac deaths through awareness, screening and research, and supporting affected families.

Unit 1140B The Axis Centre,
Cleeve Road,
Leatherhead,
KT22 7RD

01737 363222

cry@c-r-y.org.uk

British Heart Foundation

https://www.bhf.org.uk/

We are the largest independent funder of research into heart and circulatory diseases, keeping hearts beating and blood flowing.

Greater London House,
180 Hampstead Road,
London,
NW1 7AW

0300 330 3311

heretohelp@bhf.org.uk

STARS

http://www.heartrhythmalliance.org/stars/uk

Working together with individuals, families and medical professionals to offer support and information on syncope and reflex anoxic seizures (RAS)

STARS, Unit 6B, Essex House,
Cromwell Business Park,
Chipping Norton,
OX7 5SR

01789 867 503

info@stars.org.uk

AF Association

http://www.heartrhythmalliance.org/afa/uk/

Working to provide information, support and access to established, new or innovative treatments for Atrial Fibrillation (AF)

AF Association, Unit 6B,
Essex House,
Cromwell Business Park,
Chipping Norton,
OX7 5SR

01789 867 502

info@afa.org.uk

Arrhythmia Alliance

http://www.heartrhythmalliance.org/aa/uk/

Working together to improve the diagnosis, treatment and quality of life for all those affected by arrhythmias

Arrhythmia Alliance Unit 6B,
Essex House,
Cromwell Business Park,
Chipping Norton,
OX7 5SR

+44 (0)1789 867 501

info@heartrhythmalliance.org

Children’s Heart Surgery Fund

http://www.chsf.org.uk/

Supporting children and adults born with congenital heart disease.

3 Oxford Place,
Leeds,
LS1 3AX

0113 8314810

info@chsf.org.uk

Downs Heart Group

https://dhg.org.uk/

A charity offering support and information relating to heart conditions associated with Down's Syndrome

Down's Heart Group,
PO Box 4260,
Dunstable,
Beds,
LU6 2ZT

0300 102 1644

info@dhg.org.uk

Max Appeal

http://www.maxappeal.org.uk/

Supporting families affected by 22q11 Deletion Syndrome and 22q11 duplication.

13 Meriden Avenue,
Wollaston,
Stourbridge,
DY8 4QN

0300 999 2211

info@maxappeal.org.uk

Little Hearts Matter

https://www.lhm.org.uk/

Offers support and information for families with children/babies with single ventricle heart conditions

11 Greenfield Crescent,
Edgbaston,
Birmingham,
B15 3AU

0121 455 8982

info@lhm.org.uk

Children’s Heart Federation

http://www.chfed.org.uk/

National children’s heart charity working to meet the needs of children and young people with congenital and acquired heart conditions and their families

Childrens Heart Federation, Suite 12, The Centre, Lakes Industrial Park, Braintree, CM7 3RU

0300 561 0065

info@chfed.org.uk

Contact

https://contact.org.uk/uk

The UK charity for families with disabled children. Contact provides information and guidance, brings families together to support each other, and helps families campaign for change

209-211,
City Road,
LONDON,
EC1V IJN

020 7608 8700

info@contact.org.uk

Children’s Heart Association

https://heartchild.info/web/

Support group run by families and friends of cardiac children for families with, or who have had, children with heart disorders

23 Hesketh Drive,
Heswall,
Wirral,
CH60 5SP

01706 221988

information@heartchild.info

Antenatal Results and Choices

https://www.arc-uk.org/

Information and support to parents throughout antenatal testing, diagnosis and choices

345 City Road,
London,
EC1V 1LR

020 7713 7356

info@arc-uk.org

COVID-19 Advice for North West CHD Network: Advice for patients and families affected by congenital heart disease and children with other heart conditions pleaseclick here