Support Groups

Children's Heart Association

The Children’s Heart Association is our local heart charity supporting families, children and adults with congenital heart disease in the North West. They provide opportunities throughout the year to meet up with other families and offer peer to peer support.  They support the work of both our paediatric and adult services.

23 Hesketh Drive,
CH60 5SP

01706 221988

Tiny Tickers

A national charity helping improve the detection, care and treatment of babies with serious heart conditions and offering information and support to parents.

Write to us at:
Tiny Tickers, PO Box 369, Leeds LS26 1FR

0300 102 1508

Scope Community Engagement

Scope's Community Engagement project gives disable people, their families and unpaid carers the opportunity to talk about their communities and the issues they face. Click here for further information

Jo Palmer

07776 650893

North West Adult Congenital Heart (NWACH Support Group)

The North West Adult Congenital Heart Support Group has a private Facebook group that is run by the ACHD specialist nurses. It is a safe place to meet other adults with congenital heart disease to share stories and offer each other support. Regular updates are provided by the specialist ACHD team via remote meetings and Facebook live events.

Join our Facebook Group - see link under our heading.
For further information contact the Helpline on 0151 254 3333

Team 1C

Team 1C are a big cardiac family providing peer to peer support for families going through the same heart journey with their children.

Halton & St Helens VCA
2nd Floor
The Beacon Building
College Street
St Helens
WA10 6DB

Transport Services - Royal Voluntary Services

Community transport help for to and from hospital appointments etc

Contact form available at the bottom of the web link page

Lagans Foundation

Aims to physically help support families who have babies and children up to 5 years old, diagnosed with heart defects OR feeding difficulties. Lagan’s Foundation’s purpose is to provide unique at home and in hospital care to support parents in their caring role.

Lagan’s Foundation
Unit 16
Manchester Road,

01204 800300

The Somerville Foundation

Supporting young people and adults born with a heart condition

The Somerville Foundation, Saracens House, 25 St Margaret's Green, Ipswich, IP4 2BN

0800 854759


Turn to us is a national charity that helps people in financial hardship gain access to welfare benefits, charitable grants and support services.

0808 802 2000

Marfan Trust

Improve the treatment of patients and increase awareness of Marfan’s disease.

Charity Administrator, Marfan Trust, Genetics Research Centre, Molecular and Clinical Sciences Research Institute, St. George’s, University of London, Jenner Wing, Cranmer Terrace, London SW17 0RE

020 8725 5248


Heartline supports children with heart disorders and their families, whatever the condition, wherever it is treated.

033 0022 4466

Cardiomyopathy UK

Specialist national charity for people affected by cardiomyopathy. We provide support and information services, work to raise awareness of the condition, campaign for better access to quality treatment and promote research.

Unit 10, Chiltern Court,
Asheridge Road,
Chesham, Bucks.

0800 018 1024

Cardiac Risk in the Young

Preventing young sudden cardiac deaths through awareness, screening and research, and supporting affected families.

Unit 1140B The Axis Centre,
Cleeve Road,
KT22 7RD

01737 363222

British Heart Foundation

We are the largest independent funder of research into heart and circulatory diseases, keeping hearts beating and blood flowing.

Greater London House,
180 Hampstead Road,

0300 330 3311


Working together with individuals, families and medical professionals to offer support and information on syncope and reflex anoxic seizures (RAS)

STARS, Unit 6B, Essex House,
Cromwell Business Park,
Chipping Norton,

01789 867 503

AF Association

Working to provide information, support and access to established, new or innovative treatments for Atrial Fibrillation (AF)

AF Association, Unit 6B,
Essex House,
Cromwell Business Park,
Chipping Norton,

01789 867 502

Arrhythmia Alliance

Working together to improve the diagnosis, treatment and quality of life for all those affected by arrhythmias

Arrhythmia Alliance Unit 6B,
Essex House,
Cromwell Business Park,
Chipping Norton,

+44 (0)1789 867 501

Downs Heart Group

A charity offering support and information relating to heart conditions associated with Down's Syndrome

Down's Heart Group,
PO Box 4260,

0300 102 1644

Max Appeal

Supporting families affected by 22q11 Deletion Syndrome and 22q11 duplication.

13 Meriden Avenue,

0300 999 2211

Little Hearts Matter

Offers support and information for families with children/babies with single ventricle heart conditions

11 Greenfield Crescent,
B15 3AU

0121 455 8982

Children’s Heart Federation

National children’s heart charity working to meet the needs of children and young people with congenital and acquired heart conditions and their families

Childrens Heart Federation, Suite 12, The Centre, Lakes Industrial Park, Braintree, CM7 3RU

0300 561 0065


The UK charity for families with disabled children. Contact provides information and guidance, brings families together to support each other, and helps families campaign for change

City Road,

020 7608 8700

Antenatal Results and Choices

Information and support to parents throughout antenatal testing, diagnosis and choices

345 City Road,

020 7713 7356