Clinical Guidelines and Useful information

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Included below are Clinical Guidelines, Pathways, Standard Operating Procedures and Referral Forms.
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Fetal / Neonatal »

Babies & Children »

Teenagers »

Adult »

Fetal / Neonatal

Describes the referral and transfer process of a baby diagnosed with congenital heart disease

The referral pathway for premature babies that have been assessed as having  a clinically significant PDA that needs surgical ligation at Alder Hey Children’s Hospital

Clinical Guidelines for the assessment and medical treatment of PDA in premature babies. Document produced by the Neonatal Network but links closely to the referral pathway for surgical ligation

Babies & Children

Advice about how to diagnose and treat Kawasaki Syndrome

Please use this form to alert the team at Alder Hey that a baby/child who is on the waiting list for surgery or intervention needs to be reviewed sooner because their condition has changed. Please email this form to ahc-tr.cardiology@nhs.net

Please see the latest Paediatric Cardiology Referral guidelines produced by the NW CHD Network. This document is aimed at GPs and Paediatricians to help guide them to the most appropriate referral pathway for a child/baby presenting with cardiac symptoms.

Please see updated guidance regarding RSV infection and Palivizumab and who qualifies in the 2021 season.

A document describing how the supra regional Paediatric Cardiac MDT functions at Alder Hey NHS Foundation Trust.

Terms of Reference for the Paediatric Cardiac MDT.

Document that describes the process of what to do if a child or baby’s condition changes whilst they are waiting for surgery or intervention at Alder Hey NHS Foundation Trust. It is to be used in conjunction with the Clinical Urgency Update Form.

Teenagers

This document describes in detail the pathway of care and support required during early, mid and late stage transition right through to referral to adult services and beyond.

Use this form to document support and advice given from the ages of 13-14 years.

Use this form to document support and advice given from the ages of 14-16 years.

Use this form to document support and advice given from the ages of 16-18 years. This form once completed also needs to be sent to ACHD Nurse Specialists as part of the referral process.

This form is to be completed by young people age 13-14 years prior to coming to see the Nurse Specialist in the YP clinic. This will help guide the conversation towards what is important for the young person.

This form is to be completed by young people aged 14-16 years prior to coming to see the Nurse Specialist in the YP clinic. This will help guide the conversation towards what is important for the young person.

This form is to be completed by young people aged 16-18 years prior to coming to see the Nurse Specialist in the YP clinic. This will help guide the conversation towards what is important for the young person.

This form is to be filled in by the ACHD Nurse Specialists to document how the young person is settling into adult services.

Adults

Please see the attached 2020 ESC Guidelines for the management of adult congenital heart disease.

Please see the attached 2018 ESC Guidelines for the management of cardiovascular disease in pregnancy.

COVID-19 Advice for North West CHD Network: Advice for patients and families affected by congenital heart disease and children with other heart conditions pleaseclick here