Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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Up next are our amazing PAG chairs Kirsty & Layla speaking on their experience working with the NWNODN and representing the parent voice across the region 🤍 so much amazing work going on within the PAG ensuring parent voice is central to everything we do 🫶🏼 #NWNODN26

❤️AEPC Heart beats for education: Neurodevelopment in CHD
👥Many faces - 🤱👴🏻 lifelong perspective

Learn from experts in the field & join us for tomorrow's webinar!

🗓️ 17 June 2026 | 17:00–18:30 CEST
🔗 Register: https://bit.ly/3OFXBse
#AEPC #neurodevelopment #CHD #YoungAEPC

It’s Learning Disability week ❤️ Are you interested in joining our Congenital Heart Learning Disability Forum? We’d love to hear from people with lived experience, families, carers and supporters. Get in touch to find out more.

Supporting Learning Disability Week. Do you know the North West Congenital Heart Disease Network has a Learning Disability Forum. See our website and X posts for details of how to join https://www.northwestchdnetwork.nhs.uk/information/learning-disability-forum/

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Governance Structure

The governance structure is organised into several key components. At the top level, North West Health & Justice and Specialised Commissioning Senior Leadership Team (NHS England) oversees the Network, supported by various assurance groups that facilitate decision-making and escalation. 

The Network reports into NHS England for assurance purposes, ensuring compliance with national standards and guidelines. Additionally, once the Integrated Care Boards (ICBs) are fully established, the Network will be accountable to the three North West ICBs.

The three ICBs are:

  1. Greater Manchester
  2. Cheshire and Merseyside 
  3. Lancashire and South Cumbria

The governance framework includes the Network Board, which meets quarterly and is responsible for the oversight of the Network’s annual work plan. 

Dedicated task and finish groups focus on ongoing workstreams and the patient and public voice (PPV) group meets monthly to ensure the patient voice is at the heart of everything we do. This multilevel structure ensures comprehensive governance and collaboration across all levels of care delivery.

Hierarchy-meeting

Governance of the North West, North Wales and the Isle of Man Congenital Heart Disease Operational Delivery Network

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