North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:
❤️Happy Valentines all❤️ celebrating heart month on the @cha_nw walk. A fantastic sunny morning ☀️ with patients, families and colleagues. Our CSN team looking totally ace!
Families across Tameside, Saddleworth and the wider North West are joining a growing call for the NHS to formally recognise Congenital Heart Disease (CHD) as a lifelong condition.
Read more: https://saddind.co.uk/north-west-families-urge-nhs-to-recognise-congenital-heart-disease-as-a-lifelong-condition/
Unbelievably #CHD is currently not recognised as a life long condition. The @NwchdN PPV group continue their fantastic work by trying to change this and discussing the vital issue with MPs 👏
💙 #CHDAwarenessWeek
CHD is lifelong. Recognition matters. Support matters. Families matter.
Our PPV group is urging the NHS to recognise Congenital Heart Disease as a lifelong condition.
Read more ⬇️
February 12, 2026
October 27, 2025
September 24, 2025
October 3, 2025
ACHD Referral Pathway
This document provides guidance on how to refer ACHD patients. It is a useful guide for paediatric cardiologists and PEC’s who are referring a paediatric patient to adult services. It is also useful for GP’s and adult cardiologists wanting to make a new referral for an adult patient.
Cardiac Disease in Pregnancy Guideline
This guideline has been produced by the North West Maternal Medicine Network and includes information about cardiac maternity services in the North West and how to refer using this online referral form: Referral – NW Maternal Medicine Network
2020 ESC Guidelines for the Management of Adult Congenital Heart Disease
Decision-making in ACHD involves accurate diagnosis, timing of intervention, risk assessment, and selection of the most suitable type of intervention. In addition, specific aspects of medical treatment for conditions such as heart failure, pulmonary hypertension (PH), and anticoagulation are addressed.