Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

Our X Feed

📢 As we come to the end of Learning Disability week, we would like your help in sharing our survey.
We want to hear what you would like in our easy read heart health information.
Your feedback will help create resources which are clear and accessible for all our patients ❤️

Up next are our amazing PAG chairs Kirsty & Layla speaking on their experience working with the NWNODN and representing the parent voice across the region 🤍 so much amazing work going on within the PAG ensuring parent voice is central to everything we do 🫶🏼 #NWNODN26

❤️AEPC Heart beats for education: Neurodevelopment in CHD
👥Many faces - 🤱👴🏻 lifelong perspective

Learn from experts in the field & join us for tomorrow's webinar!

🗓️ 17 June 2026 | 17:00–18:30 CEST
🔗 Register: https://bit.ly/3OFXBse
#AEPC #neurodevelopment #CHD #YoungAEPC

It’s Learning Disability week ❤️ Are you interested in joining our Congenital Heart Learning Disability Forum? We’d love to hear from people with lived experience, families, carers and supporters. Get in touch to find out more.

Load More

News

Adult

  • The purpose of this information
    Documents for Adults
  • Who this information is for
  • Date Published

ACHD EP & Device Referral Pathway

This document provides guidance on how to refer ACHD patients for expert assessment and treatment for electrophysiology and device procedures.

ACHD Referral Pathway

This document provides guidance on how to refer ACHD patients. It is a useful guide for paediatric cardiologists and PEC’s who are referring a paediatric patient to adult services. It is also useful for GP’s and adult cardiologists wanting to make a new referral for an adult patient.

Anaesthesia for non-cardiac surgery in patients with ACHD

Article from Elsevier Journal: August 2025

Key points:
–  Patients with adult congenital heart disease have diverse conditions and high perioperative risks associated with non-cardiac surgery.
–  Classification by anatomical complexity and physiological status aids in perioperative planning.
–  Close coordination with multidisciplinary teams
from specialist centres improves safety and reduces complications.
–  Tailored anaesthetic strategies and postoperative care are crucial for optimal outcomes.

www.elsevier.com 

Anaesthetic Management of Adults with Congenital Heart Disease Presenting for Noncardiac Surgery – Anaesthetic Tutorial of the Week

Key points:

– Adult congenital heart disease confers significant morbidity and mortality.

–  Lesions can be stratified as simple, moderate, and complex in terms of prognosis and outcomes.

–  Comorbidities impact perioperative planning for noncardiac surgery, and specialist input should be sought for moderate and complex lesions.

–  A thorough understanding of the underlying physiology is necessary to ensure a good perioperative outcome.

–  No single anaesthetic technique is better than another and should be tailored to the patient.

www.wfsahq.org

Cardiac Disease in Pregnancy Guideline

This guideline has been produced by the North West Maternal Medicine Network and includes information about cardiac maternity services in the North West and how to refer using this online referral form: Referral – NW Maternal Medicine Network

Clinical practical advice for anaesthetic management of adults with congenital heart disease undergoing non-cardiac surgery:

A clinical consensus statement of the ESC Working Group on Adult Congenital Heart Disease, the European Society of Anaesthesiology and Intensive Care, the European Association of Cardiothoracic Anaesthesiology and Intensive Care and the International Society of Adult Congenital Heart Disease.

Guidelines for anaesthesia of adults with CHD in non-cardiac surgery

Article from Elsevier Journal: Anaesthesia Critical Care and Pain Medicine.  www.elsevier.com 

2020 ESC Guidelines for the Management of Adult Congenital Heart Disease

Decision-making in ACHD involves accurate diagnosis, timing of intervention, risk assessment, and selection of the most suitable type of intervention. In addition, specific aspects of medical treatment for conditions such as heart failure, pulmonary hypertension (PH), and anticoagulation are addressed.

2025 ESC Guidelines for the Management of CVD in pregnancy

See the latest guidelines (2025) from the European Society of Cardiology relating to the management of cardiovascular disease in pregnancy.

Skip to content