Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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📢 Are you interested in joining the NW CHD Network Patient &Public Voice Group or just want to know more about the excellent work they do? Join our informal information session via Teams on 09/09/26 #chd #ACHD #paediatriccardiology ❤️❤️❤️

https://www.northwestchdnetwork.nhs.uk/all-about-our-patient-and-public-voice-group-ppv/

If you become our supporter on easyfundraising, you'll raise free funds for Somerville Heart Foundation simply by shopping online.

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Empowering hearts globally (EHG) launches their first 'Fundamentals in pediatric & congenital cardiology' boot camp!
A comprehensive 4-week online course designed to build practical knowledge & clinical confidence in pediatric cardiology. 
Find out more: https://empoweringheartsglobally.org/2026-fundamentals-course/

Our private online communities offer support for people affected by CHD:

❤️ Somerville ACHD Patient Group 1 – for CHD patients
❤️ Heart Families – for family, friends and carers

Join or become a member for free: https://sfhearts.org.uk/sign-up/

News

PPV Documents

  • The purpose of this information
    Fetal Documents
  • Who this information is for
  • Date Published

On this page you will find all of the relevant documents to support the Network Patient and Public Voice Group

PPV Role Descriptions

This gives an outline of what is involved in becoming a PPV member. It describes what to expect when you apply to become a member. It talks about people being experts in living with or caring for someone with a heart condition. This expertise is what qualifies you for this important role.  If you have any questions and want to speak to the Lead Nurse you can email her at: northwestchdnetwork@alderhey.nhs.uk 
 
 

PPV Terms of Reference

This document explains the purpose and structure of the group. It helps everyone to understand  the group’s role, how it works, and what is expected from its members.

Pathway to becoming a Patient and Public Voice Representative

This is a step-by-step overview of how to become a Patient and Public Voice Representative. 

Application Form

We recommend that you have a read of the role description first. If after doing this you would like to apply to join the PPV group then download this form and fill it in. You can send the completed form back to our Network Support Officer at:  northwestchdnetwork@alderhey.nhs.uk 

PPV Advert

This is an advert that can be downloaded and printed locally to be displayed in hospital waiting rooms and wards etc. It can be displayed in any clinical area where patients and families might see it and be interested in joining.

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