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North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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CHD Network - Committed to providing high quality care for everyone affected by Congenital Heart Disease in the North West of England, North Wales & Isle of Man

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Avatar Somerville Heart Foundation @heartsomerville ·
22 Jul

The CPET measures the function of your heart, lungs and muscles during exercise.

Dr Joy explains why you might be advised to have the test & what it tells healthcare professionals about your CHD 🥰

Watch the recording from our Hearts Together event: https://sfhearts.org.uk/members-area/webinars-and-videos/

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Avatar NWCHDNetwork @nwchdn ·
22 Jul

📢Calling all neonatal teams across the NW CHD Network. Please join us at our face to face neonatal cardiac study day
Scan the QR code or click on the link to register: https://forms.office.com/Pages/ResponsePage.aspx?id=G888R1c5sE6Cur6KaqH2So_4u0dxYwhNtJ0sZS1kS3BUQVVKN1NFNlI3NlBYOFRVTlcwT0ZQVTFWNC4u

#cardiacbabies ❤️❤️

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Avatar NWCHDNetwork @nwchdn ·
22 Jul

Can you help in the testing of a newly developed education game about heart failure and associated kidney health? The game is focussed on adult patients or carers of adults.

Please click this link to sign up: https://forms.office.com/e/kzhM3u78Ws

#heartfailure #research

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Avatar NWCHDNetwork @nwchdn ·
9 Jul

📢We want to hear what you would like in our easy read heart health information.
Your feedback will help create resources which are clear and accessible for all our patients who have Congenital Heart Disease ❤️

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PPV Documents

  • The purpose of this information
    Fetal Documents
  • Who this information is for
  • Date Published
    2024-12-27

On this page you will find all of the relevant documents to support the Network Patient and Public Voice Group

PPV Role Descriptions

This gives an outline of what is involved in becoming a PPV member. It describes what to expect when you apply to become a member. It talks about people being experts in living with or caring for someone with a heart condition. This expertise is what qualifies you for this important role.  If you have any questions and want to speak to the Lead Nurse you can email her at: northwestchdnetwork@alderhey.nhs.uk 
 
 

PPV Terms of Reference

This document explains the purpose and structure of the group. It helps everyone to understand  the group’s role, how it works, and what is expected from its members.

Pathway to becoming a Patient and Public Voice Representative

This is a step-by-step overview of how to become a Patient and Public Voice Representative. 

Application Form

We recommend that you have a read of the role description first. If after doing this you would like to apply to join the PPV group then download this form and fill it in. You can send the completed form back to our Network Support Officer at:  northwestchdnetwork@alderhey.nhs.uk 

PPV Advert

This is an advert that can be downloaded and printed locally to be displayed in hospital waiting rooms and wards etc. It can be displayed in any clinical area where patients and families might see it and be interested in joining.

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