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North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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CHD Network - Committed to providing high quality care for everyone affected by Congenital Heart Disease in the North West of England, North Wales & Isle of Man

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Avatar NW Neonatal ODN @nwneonatalodn ·
16 Jun

Up next are our amazing PAG chairs Kirsty & Layla speaking on their experience working with the NWNODN and representing the parent voice across the region 🤍 so much amazing work going on within the PAG ensuring parent voice is central to everything we do 🫶🏼 #NWNODN26

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Avatar AEPC - Paediatric and Congenital Cardiology @aepccongenital ·
16 Jun

❤️AEPC Heart beats for education: Neurodevelopment in CHD
👥Many faces - 🤱👴🏻 lifelong perspective

Learn from experts in the field & join us for tomorrow's webinar!

🗓️ 17 June 2026 | 17:00–18:30 CEST
🔗 Register: https://bit.ly/3OFXBse
#AEPC #neurodevelopment #CHD #YoungAEPC

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Avatar NWCHDNetwork @nwchdn ·
15 Jun

It’s Learning Disability week ❤️ Are you interested in joining our Congenital Heart Learning Disability Forum? We’d love to hear from people with lived experience, families, carers and supporters. Get in touch to find out more.

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Avatar NWCHDNetwork @nwchdn ·
15 Jun

Supporting Learning Disability Week. Do you know the North West Congenital Heart Disease Network has a Learning Disability Forum. See our website and X posts for details of how to join https://www.northwestchdnetwork.nhs.uk/information/learning-disability-forum/

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PPV Documents

  • The purpose of this information
    Fetal Documents
  • Who this information is for
  • Date Published
    2024-12-27

On this page you will find all of the relevant documents to support the Network Patient and Public Voice Group

PPV Role Descriptions

This gives an outline of what is involved in becoming a PPV member. It describes what to expect when you apply to become a member. It talks about people being experts in living with or caring for someone with a heart condition. This expertise is what qualifies you for this important role.  If you have any questions and want to speak to the Lead Nurse you can email her at: northwestchdnetwork@alderhey.nhs.uk 
 
 

PPV Terms of Reference

This document explains the purpose and structure of the group. It helps everyone to understand  the group’s role, how it works, and what is expected from its members.

Pathway to becoming a Patient and Public Voice Representative

This is a step-by-step overview of how to become a Patient and Public Voice Representative. 

Application Form

We recommend that you have a read of the role description first. If after doing this you would like to apply to join the PPV group then download this form and fill it in. You can send the completed form back to our Network Support Officer at:  northwestchdnetwork@alderhey.nhs.uk 

PPV Advert

This is an advert that can be downloaded and printed locally to be displayed in hospital waiting rooms and wards etc. It can be displayed in any clinical area where patients and families might see it and be interested in joining.

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