Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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Up next are our amazing PAG chairs Kirsty & Layla speaking on their experience working with the NWNODN and representing the parent voice across the region 🤍 so much amazing work going on within the PAG ensuring parent voice is central to everything we do 🫶🏼 #NWNODN26

❤️AEPC Heart beats for education: Neurodevelopment in CHD
👥Many faces - 🤱👴🏻 lifelong perspective

Learn from experts in the field & join us for tomorrow's webinar!

🗓️ 17 June 2026 | 17:00–18:30 CEST
🔗 Register: https://bit.ly/3OFXBse
#AEPC #neurodevelopment #CHD #YoungAEPC

It’s Learning Disability week ❤️ Are you interested in joining our Congenital Heart Learning Disability Forum? We’d love to hear from people with lived experience, families, carers and supporters. Get in touch to find out more.

Supporting Learning Disability Week. Do you know the North West Congenital Heart Disease Network has a Learning Disability Forum. See our website and X posts for details of how to join https://www.northwestchdnetwork.nhs.uk/information/learning-disability-forum/

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Patient and Public Voice

Patient and Public Voice

The patient and public voice refers to the involvement of patients, caregivers, and members of the public in shaping healthcare services and decisions. Their role is to:

Provide insight into how healthcare services affect real people.

Highlight what is important to patients and communities.

Work with healthcare providers, researchers, and policymakers to improve services.

Help create solutions that meet the needs of diverse groups.

Make sure services are patient-centered and transparent.

In short, this ensures that healthcare decisions are informed by the voices of those who use and rely on the services.

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