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North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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CHD Network - Committed to providing high quality care for everyone affected by Congenital Heart Disease in the North West of England, North Wales & Isle of Man

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Avatar Somerville Heart Foundation @heartsomerville ·
22 May

As a CHD patient, you may have been told to avoid certain activities or be concerned about side effects but carefully-chosen exercises suitable for your health conditions, will provide benefits that outweigh the risks.

Read more in our Exercise leaflet:
https://sfhearts.org.uk/leaflets/

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Avatar Somerville Heart Foundation @heartsomerville ·
26 May

Living with CHD means you need to be mindful in the heat. High temperatures can put extra strain on your heart so take care of yourself...

💧 Stay hydrated
🧢 Wear a hat and light clothing
⛱️ Stick to the shade or stay indoors
📱 Let someone know if you feel unwell

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Avatar NWCHDNetwork @nwchdn ·
14 May

📢 calling all patients, families and carers of a child with a heart condition or adult Congenital Heart Disease 📢come and meet your patient reps at one of our drop-in sessions # Keeping patients at the heart of every conversation and decision #CHD # ACHD # PPV

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Avatar 🏥 Alder Hey 💙 @alderhey ·
23 Apr

Alder Connect our new Patient Portal, is now live 💙

You’ll get a text with your registration link 📱

Once you’re in, you can:

✔ Check appointments
✔ Read letters
✔ Manage bookings
✔ View allergies

Got an appointment coming up? Keep an eye on your messages 👀

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News

Patient Stories

Patient-Stories
Patient Stories

Hear Our Stories

Hearing about patients and families personal stories is incredibly powerful and helps staff to remember that the reason for the service is that there is a patient at the centre of it. It is also helpful for other patients and families to hear that they are not alone and to see other people going through similar journeys.

Stories For The Website

We are looking for patients and families who are willing to share their story. If you are interested in sharing your story please contact the Network by emailing northwestchdnetwork@alderhey.nhs.uk

 

This video follows a life journey from finding out about a heart problem before you are born through to old age whilst highlighting the work of the Patient Public Voice (PPV) group in an emotionally engaging, informative manner.

PATIENT STORY ARTICLES

ALL THE LATEST

Mike’s Story
Mike’s Story
Alistair’s Story
Alistair’s Story
Aurelia’s Story
Aurelia’s Story
Patient Stories

Stories to be read out at the CHD Network Board

To find out more about the Network Board click here or scan the QR code below. We have a patient story at the beginning of each Board. The Board meets every three months. This is important to make sure that everyone at the meeting remembers why they are there and that the priority is to improve services for families and patients. The story for the Board needs to be focussed on one element of your care. The story may focus on something that you think needs improvement but it could also be a celebration of fantastic care that you have received as well. You can make recommendations to the Board based on your story. If you are interested in sharing your story to the Board in this way please email our Lead Nurse at northwestchdnetwork@alderhey.nhs.uk who will get back in touch with you and will help support you to do this.

SHARE YOUR STORY

CLICK HERE FOR QR CODE


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