Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

Our X Feed

Join us for a new ❤️AEPC Heart beats for education - #Pregnancy in complex #CHD

🤰🏼Case presentation
🫀Pregnancy in Fontan
❓Challenging cases & key learnings

🗓️ Join us on 3 June 2026 | 17:00–18:30CEST
🔗 https://bit.ly/3OFXBse

#PediatricCardiology #YoungAEPC #ACHD

Our Network Lead Nurse attended the Liverpool and Sefton Mencap Conference to learn about the I’m In campaign. Some people with CHD also have a learning disability, joining the Learning Disability Register is key in ensuring they receive the adjustments and support they need.

As a CHD patient, you may have been told to avoid certain activities or be concerned about side effects but carefully-chosen exercises suitable for your health conditions, will provide benefits that outweigh the risks.

Read more in our Exercise leaflet:
https://sfhearts.org.uk/leaflets/

Living with CHD means you need to be mindful in the heat. High temperatures can put extra strain on your heart so take care of yourself...

💧 Stay hydrated
🧢 Wear a hat and light clothing
⛱️ Stick to the shade or stay indoors
📱 Let someone know if you feel unwell

Load More

News

Young People

  • The purpose of this information
    Documents for Young People
  • Who this information is for
  • Date Published

Transition SOP

This document describes in detail the pathway of care and support required to help young people become more independent with their heart condition and to transfer successfully to adult services.

Patient Questionnaire (Age 13yrs up to 14yrs)

This questionnaire is to be used in the Young People’s (YP) Clinic. It can be given to young people aged 13 yrs to help support discussions on an individual level.

Patient Questionnaire (Age 14 yrs up to 16yrs)

This questionnaire is to be used in the Young People (YP) Clinic. It can be given to young people aged 14 up to 16 years of age to help support discussions on an individual level.

Patient Questionnaire (age 16-18yrs)

This questionnaire is to be used in the Young People’s (YP) Clinic. It can be given to young people aged 16 – 18 years of age to help support discussions on an individual level.

Late-Stage Transition Documentation

This form is to be completed by the Young People’s Specialist Nurse together with the young person who is about to transfer their care to adult services. This form can be used to document the support and advice that has been provided between 16-18 yrs of age and includes important information required by the adult services.

ACHD Documentation

This form is to be completed by the ACHD Nurse Specialist to document how the young person is settling into adult services and identify any additional support that may be required.

ICC Transition Documents

ICC Transition SOP

This document describes in detail the pathway of care and support required to help young people with inherited cardiac conditions to become more independent with their heart condition and to transfer successfully to adult services.

Patient Questionnaire (ICC) from age 13 yrs

This questionnaire is to be used in the Young People’s (YP) ICC Clinic. It can be given to young people aged 13 yrs to help support discussions on an individual level.

Patient Questionnaire (ICC) from age 14 yrs up to 16 yrs

This questionnaire is to be used in the Young People (YP) ICC Clinic. It can be given to young people aged 14 up to 16 years of age to help support discussions on an individual level.

Patient Questionnaire (ICC) from age 16 yrs up to 18 yrs

This questionnaire is to be used in the Young People’s (YP) ICC Clinic. It can be given to young people aged 16 – 18 years of age to help support discussions on an individual level.

Late stage transition documentation (ICC)

This form is to be completed by the Young People’s Specialist Nurse (ICC) together with the young person who is about to transfer their care to adult services. This form can be used to document the support and advice that has been provided between 16-18 yrs of age and includes important information required by the adult services.

Adult ICC Documentation

This form is to be completed by the Adult ICC team to document how the young person is settling into adult services and identify any additional support that may be required.

Skip to content