Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

Our X Feed

Our private online communities offer support for people affected by CHD:

❤️ Somerville ACHD Patient Group 1 – for CHD patients
❤️ Heart Families – for family, friends and carers

Join or become a member for free: https://sfhearts.org.uk/sign-up/

The CPET measures the function of your heart, lungs and muscles during exercise.

Dr Joy explains why you might be advised to have the test & what it tells healthcare professionals about your CHD 🥰

Watch the recording from our Hearts Together event: https://sfhearts.org.uk/members-area/webinars-and-videos/

📢Calling all neonatal teams across the NW CHD Network. Please join us at our face to face neonatal cardiac study day
Scan the QR code or click on the link to register: https://forms.office.com/Pages/ResponsePage.aspx?id=G888R1c5sE6Cur6KaqH2So_4u0dxYwhNtJ0sZS1kS3BUQVVKN1NFNlI3NlBYOFRVTlcwT0ZQVTFWNC4u

#cardiacbabies ❤️❤️

Can you help in the testing of a newly developed education game about heart failure and associated kidney health? The game is focussed on adult patients or carers of adults.

Please click this link to sign up: https://forms.office.com/e/kzhM3u78Ws

#heartfailure #research

News

Local & National Support Groups

See below a list of local and National charities supporting children with heart problems and adults with congenital heart disease. This list also includes charities that offer general support, information and advice. 

If you are aware of any other charities or support groups that might be helpful for patients and families to be aware of please let us know by emailing this information to northwestchdnetwork@alderhey.nhs.uk 

 

Click on each individual box to be taken to the website. 

The Somerville Heart Foundation

British Heart Foundation

NWACH

BEAT Eating Disorders

NHS Live Well

FRANK

Drinkaware

MIND

NHS Sexual Health Services

YoungMinds

Patient Transport Service (PTS NWAS)

Transport for Sick Children

Well Child

Rainbow Trust Children's Charity

Scope Community Engagement

Transport Services - Royal Voluntary Services

Lagan's Foundation

Turn2us

Marfan Trust

Heartline

STARS

AF Association

Arrhythmia Alliance

Contact

Molly Ollys

Heart Heroes

Pyjama Fairies

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