Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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CHD Network - Committed to providing high quality care for everyone affected by Congenital Heart Disease in the North West of England, North Wales & Isle of Man

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Avatar Somerville Heart Foundation @heartsomerville ·
22 Jul

The CPET measures the function of your heart, lungs and muscles during exercise.

Dr Joy explains why you might be advised to have the test & what it tells healthcare professionals about your CHD 🥰

Watch the recording from our Hearts Together event: https://sfhearts.org.uk/members-area/webinars-and-videos/

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Avatar NWCHDNetwork @nwchdn ·
22 Jul

📢Calling all neonatal teams across the NW CHD Network. Please join us at our face to face neonatal cardiac study day
Scan the QR code or click on the link to register: https://forms.office.com/Pages/ResponsePage.aspx?id=G888R1c5sE6Cur6KaqH2So_4u0dxYwhNtJ0sZS1kS3BUQVVKN1NFNlI3NlBYOFRVTlcwT0ZQVTFWNC4u

#cardiacbabies ❤️❤️

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Avatar NWCHDNetwork @nwchdn ·
22 Jul

Can you help in the testing of a newly developed education game about heart failure and associated kidney health? The game is focussed on adult patients or carers of adults.

Please click this link to sign up: https://forms.office.com/e/kzhM3u78Ws

#heartfailure #research

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Avatar NWCHDNetwork @nwchdn ·
9 Jul

📢We want to hear what you would like in our easy read heart health information.
Your feedback will help create resources which are clear and accessible for all our patients who have Congenital Heart Disease ❤️

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Local & National Support Groups

See below a list of local and National charities supporting children with heart problems and adults with congenital heart disease. This list also includes charities that offer general support, information and advice when living with a chronic illness. 

If you are aware of any other charities or support groups that might be helpful for patients and families to be aware of please let us know by emailing this information to northwestchdnetwork@alderhey.nhs.uk 

 

Click on each individual box to be taken to the website. The “more info” button will provide contact details of the organisation.

Children's Heart Association

The Somerville Heart Foundation

British Heart Foundation

NWACH

More Info

NWACH

This is a support group for adults who have grown up with their heart problem and are being cared for in the North West of England, North Wales or the Isle of Man.

Join via FaceBook: N-WACH Support Group | Facebook

Telephone the ACHD Helpline: 0151 254 3333 to find out more.

BEAT Eating Disorders

NHS Live Well

FRANK

Drinkaware

MIND

NHS Sexual Health Services

YoungMinds

Patient Transport Service (PTS NWAS)

Transport for Sick Children

Well Child

Rainbow Trust Children's Charity

Scope Community Engagement

Transport Services - Royal Voluntary Services

Lagan's Foundation

Turn2us

Marfan Trust

Heartline

STARS

AF Association

Arrhythmia Alliance

Contact

Molly Ollys

Cardiomyopathy UK

Heart Heroes

Pyjama Fairies

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