Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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📢 calling all patients, families and carers of a child with a heart condition or adult Congenital Heart Disease 📢come and meet your patient reps at one of our drop-in sessions # Keeping patients at the heart of every conversation and decision #CHD # ACHD # PPV

From organising fundraisers and moderating our Facebook groups to serving on steering groups and supporting our events, our volunteers make an incredible difference. We would like to thank each and every one of them this week and throughout the year...

Join us for a new ❤️AEPC Heart beats for education - #Pregnancy in complex #CHD

🤰🏼Case presentation
🫀Pregnancy in Fontan
❓Challenging cases & key learnings

🗓️ Join us on 3 June 2026 | 17:00–18:30CEST
🔗 https://bit.ly/3OFXBse

#PediatricCardiology #YoungAEPC #ACHD

Our Network Lead Nurse attended the Liverpool and Sefton Mencap Conference to learn about the I’m In campaign. Some people with CHD also have a learning disability, joining the Learning Disability Register is key in ensuring they receive the adjustments and support they need.

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NHS England Standards

NHS England

Congenital Heart Disease Standards & Specifications

The following brings together a suite of documents setting out adult and paediatric standards and service specifications for congenital heart disease services in England, agreed by the NHS England Board on 23 July 2015 and effective from 1 April 2016.

Please note that this service specification and standards does not cover paediatric acquired and/or Inherited Cardiac Conditions (ICC) and are only applicable to congenital heart disease. However, the North West CHD Network is responsible for all paediatric cardiac services as per the Network specification below.

Congenital Heart Disease Standards and Specifications

Network-Specification-2

NHS England

Congenital Heart Disease and Paediatric Cardiac Clinical Network

Patients are best served when the whole system works together and Paediatric Cardiac and Adult Congenital Heart Disease networks are well placed to facilitate collaborative working, bringing together commissioners, providers and patients in the design and delivery of high quality services. Services for both children and adults are covered by a single network.

In 2015, the NHS England Board agreed standards for CHD covering the entire patient pathway, for children and adults, from diagnosis through to treatment and then on into care at home. It is a requirement of these standards that these services are delivered as part of an all-age provider network. supported by funded clinical networks. Paediatric Cardiac and Adult Congenital Heart Disease Clinical Networks are, in turn, responsible for ensuring that these standards are implemented so that patients across the country have equitable access to high quality services. The requirements for these networks are described in this specification.

Congenital Heart Disease and Paediatric Cardiac Clinical Network Specification

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