Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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Up next are our amazing PAG chairs Kirsty & Layla speaking on their experience working with the NWNODN and representing the parent voice across the region 🤍 so much amazing work going on within the PAG ensuring parent voice is central to everything we do 🫶🏼 #NWNODN26

❤️AEPC Heart beats for education: Neurodevelopment in CHD
👥Many faces - 🤱👴🏻 lifelong perspective

Learn from experts in the field & join us for tomorrow's webinar!

🗓️ 17 June 2026 | 17:00–18:30 CEST
🔗 Register: https://bit.ly/3OFXBse
#AEPC #neurodevelopment #CHD #YoungAEPC

It’s Learning Disability week ❤️ Are you interested in joining our Congenital Heart Learning Disability Forum? We’d love to hear from people with lived experience, families, carers and supporters. Get in touch to find out more.

Supporting Learning Disability Week. Do you know the North West Congenital Heart Disease Network has a Learning Disability Forum. See our website and X posts for details of how to join https://www.northwestchdnetwork.nhs.uk/information/learning-disability-forum/

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News

Fetal and Neonatal

  • The purpose of this information
    Fetal Documents
  • Who this information is for
  • Date Published

Acute Post Natal Cardiac Pathway

This pathway describes the recommended referral and transfer pathway to be followed when a baby is born with a heart condition.

Clinical Guideline for the Management of PDA

Clinical guideline describing the assessment and medical treatment of PDA in premature babies. This document is produced by the North West Neonatal Network and is to be used in conjunction with the referral pathway for surgical ligation.

Perinatal Management Plan 

This perinatal management plan can be downloaded and is to be used as directed in the “Prenatal Diagnosis of Congenital Heart Disease and Perinatal Management SOP”. This is to improve communication between obstetric teams and the neonatal teams looking after the baby. The parents should be given a copy of this plan.

Prenatal Diagnosis of Congenital Heart Disease and Perinatal Management Planning SOP

This document describes the referral pathway to be followed when an abnormality of the fetal heart is suspected at the routine 20-week anomaly scan. It also contains guidance on perinatal management.

Urgent Referral for Management of PDA SOP in Premature Babies

This document describes the referral pathway for premature babies that have been assessed as having a clinically significant Patent Ductus Arteriosus (PDA) that needs surgical ligation at Alder Hey Children’s Hospital.

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