Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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Join us for a new ❤️AEPC Heart beats for education - #Pregnancy in complex #CHD

🤰🏼Case presentation
🫀Pregnancy in Fontan
❓Challenging cases & key learnings

🗓️ Join us on 3 June 2026 | 17:00–18:30CEST
🔗 https://bit.ly/3OFXBse

#PediatricCardiology #YoungAEPC #ACHD

Our Network Lead Nurse attended the Liverpool and Sefton Mencap Conference to learn about the I’m In campaign. Some people with CHD also have a learning disability, joining the Learning Disability Register is key in ensuring they receive the adjustments and support they need.

As a CHD patient, you may have been told to avoid certain activities or be concerned about side effects but carefully-chosen exercises suitable for your health conditions, will provide benefits that outweigh the risks.

Read more in our Exercise leaflet:
https://sfhearts.org.uk/leaflets/

Living with CHD means you need to be mindful in the heat. High temperatures can put extra strain on your heart so take care of yourself...

💧 Stay hydrated
🧢 Wear a hat and light clothing
⛱️ Stick to the shade or stay indoors
📱 Let someone know if you feel unwell

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News

Fetal and Neonatal

  • The purpose of this information
    Fetal Documents
  • Who this information is for
  • Date Published

Acute Post Natal Cardiac Pathway

This pathway describes the recommended referral and transfer pathway to be followed when a baby is born with a heart condition.

Clinical Guideline for the Management of PDA

Clinical guideline describing the assessment and medical treatment of PDA in premature babies. This document is produced by the North West Neonatal Network and is to be used in conjunction with the referral pathway for surgical ligation.

Perinatal Management Plan 

This perinatal management plan can be downloaded and is to be used as directed in the “Prenatal Diagnosis of Congenital Heart Disease and Perinatal Management SOP”. This is to improve communication between obstetric teams and the neonatal teams looking after the baby. The parents should be given a copy of this plan.

Prenatal Diagnosis of Congenital Heart Disease and Perinatal Management Planning SOP

This document describes the referral pathway to be followed when an abnormality of the fetal heart is suspected at the routine 20-week anomaly scan. It also contains guidance on perinatal management.

Urgent Referral for Management of PDA SOP in Premature Babies

This document describes the referral pathway for premature babies that have been assessed as having a clinically significant Patent Ductus Arteriosus (PDA) that needs surgical ligation at Alder Hey Children’s Hospital.

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