Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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Join us for a new ❤️AEPC Heart beats for education - #Pregnancy in complex #CHD

🤰🏼Case presentation
🫀Pregnancy in Fontan
❓Challenging cases & key learnings

🗓️ Join us on 3 June 2026 | 17:00–18:30CEST
🔗 https://bit.ly/3OFXBse

#PediatricCardiology #YoungAEPC #ACHD

Our Network Lead Nurse attended the Liverpool and Sefton Mencap Conference to learn about the I’m In campaign. Some people with CHD also have a learning disability, joining the Learning Disability Register is key in ensuring they receive the adjustments and support they need.

As a CHD patient, you may have been told to avoid certain activities or be concerned about side effects but carefully-chosen exercises suitable for your health conditions, will provide benefits that outweigh the risks.

Read more in our Exercise leaflet:
https://sfhearts.org.uk/leaflets/

Living with CHD means you need to be mindful in the heat. High temperatures can put extra strain on your heart so take care of yourself...

💧 Stay hydrated
🧢 Wear a hat and light clothing
⛱️ Stick to the shade or stay indoors
📱 Let someone know if you feel unwell

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News

Transplant Services

Great Ormond Street Hospital (GOSH) and the Freeman Hospital in Newcastle are two of the UK’s leading centres for paediatric and adult transplant services, respectively.

GOSH

Great Ormond Street Hospital (GOSH)

GOSH has been at the forefront of paediatric transplantation since 1988. In 2001, a merger with the Harefield paediatric transplant programme created the largest such unit in Europe and one of the largest in the world.

Freeman Hospital

The Freeman Hospital’s Institute of Transplantation is the UK’s first centre dedicated solely to lifesaving transplants. The Freeman Hospital is the only cardiothoracic centre in the UK that provides adult and paediatric congenital heart and lung surgery, heart and lung transplantation, and mechanical circulatory support all under one roof.

Freeman-Hospital

For healthcare professionals seeking to refer patients to Great Ormond Street Hospital (GOSH) or the Freeman Hospital for transplant services, the following information outlines the referral processes:

Cardiothoracic Transplant Referrals:

  • Outpatient Appointments: Referrals should be made in writing to:

Cardiothoracic Transplant Team
Level 6 Main Nurses Home, Room E6032
Great Ormond Street Hospital
Great Ormond Street
London
WC1N 3JH

  • Inter-Hospital Transfers: For emergency or urgent transfers, contact the Cardiothoracic Transplant department directly on:

Telephone: 0207 405 9200
Bleep: 0548.
                 

  • Consultation and Advice: For patients known to GOSH, contact the on-call cardiologist or registrar for emergencies. For non-urgent cases, reach out to the Cardiothoracic Transplant Office at 020 7813 8563.


For detailed information, please visit
GOSH Referral Information

Heart and Lung Transplant Referrals:

  • Referral Guidance: Healthcare professionals can seek referral guidance for heart and lung transplantation by contacting the Cardiopulmonary Transplant Unit at the Freeman Hospital:

    Telephone: 0191 223 1132

     

For more information, please visit the Freeman Hospital Professionals Page

Please ensure that all referrals include comprehensive medical information to facilitate the assessment and decision-making process.

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