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North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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CHD Network - Committed to providing high quality care for everyone affected by Congenital Heart Disease in the North West of England, North Wales & Isle of Man

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Avatar NW Neonatal ODN @nwneonatalodn ·
16 Jun

Up next are our amazing PAG chairs Kirsty & Layla speaking on their experience working with the NWNODN and representing the parent voice across the region 🤍 so much amazing work going on within the PAG ensuring parent voice is central to everything we do 🫶🏼 #NWNODN26

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Avatar AEPC - Paediatric and Congenital Cardiology @aepccongenital ·
16 Jun

❤️AEPC Heart beats for education: Neurodevelopment in CHD
👥Many faces - 🤱👴🏻 lifelong perspective

Learn from experts in the field & join us for tomorrow's webinar!

🗓️ 17 June 2026 | 17:00–18:30 CEST
🔗 Register: https://bit.ly/3OFXBse
#AEPC #neurodevelopment #CHD #YoungAEPC

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Avatar NWCHDNetwork @nwchdn ·
15 Jun

It’s Learning Disability week ❤️ Are you interested in joining our Congenital Heart Learning Disability Forum? We’d love to hear from people with lived experience, families, carers and supporters. Get in touch to find out more.

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Avatar NWCHDNetwork @nwchdn ·
15 Jun

Supporting Learning Disability Week. Do you know the North West Congenital Heart Disease Network has a Learning Disability Forum. See our website and X posts for details of how to join https://www.northwestchdnetwork.nhs.uk/information/learning-disability-forum/

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Journey of Hope

Patient and Public Voice Video

This video follows a life journey from finding out about a heart problem before you are born through to old age whilst highlighting the work of the Patient Public Voice (PPV) group in an emotionally engaging, informative manner. It emphasises the essential role the PPV group plays in shaping patient-centred care and connecting patients and families across different regions.
 
This video has closed captions available in English. You can turn them on by clicking the ‘CC’ button in the video player settings.
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