Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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❤️Happy Valentines all❤️ celebrating heart month on the @cha_nw walk. A fantastic sunny morning ☀️ with patients, families and colleagues. Our CSN team looking totally ace!

Families across Tameside, Saddleworth and the wider North West are joining a growing call for the NHS to formally recognise Congenital Heart Disease (CHD) as a lifelong condition.

Read more: https://saddind.co.uk/north-west-families-urge-nhs-to-recognise-congenital-heart-disease-as-a-lifelong-condition/

Unbelievably #CHD is currently not recognised as a life long condition. The @NwchdN PPV group continue their fantastic work by trying to change this and discussing the vital issue with MPs 👏

💙 #CHDAwarenessWeek
CHD is lifelong. Recognition matters. Support matters. Families matter.

Our PPV group is urging the NHS to recognise Congenital Heart Disease as a lifelong condition.

Read more ⬇️

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NHS England Standards

NHS England Congenital Heart Disease Standards & Specifications

Service Specification

The following brings together a suite of documents setting out adult and paediatric standards and service specifications for congenital heart disease services in England, agreed by the NHS England Board on 23 July 2015 and effective from 1 April 2016.

Please note that this service specification and standards does not cover paediatric acquired and/or Inherited Cardiac Conditions (ICC) and are only applicable to congenital heart disease. However, the North West CHD Network is responsible for all paediatric cardiac services as per the Network specification below.

Congenital Heart Disease Standards and Specifications

Network-Specification-2

NHS England Congenital Heart Disease and Paediatric Cardiac Clinical Network Specification

Network Specification

Patients are best served when the whole system works together and Paediatric Cardiac and Adult Congenital Heart Disease networks are well placed to facilitate collaborative working, bringing together commissioners, providers and patients in the design and delivery of high quality services. Services for both children and adults are covered by a single network.

In 2015, the NHS England Board agreed standards for CHD covering the entire patient pathway, for children and adults, from diagnosis through to treatment and then on into care at home. It is a requirement of these standards that these services are delivered as part of an all-age provider network. supported by funded clinical networks. Paediatric Cardiac and Adult Congenital Heart Disease Clinical Networks are, in turn, responsible for ensuring that these standards are implemented so that patients across the country have equitable access to high quality services. The requirements for these networks are described in this specification.

Congenital Heart Disease and Paediatric Cardiac Clinical Network Specification

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