Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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❤️Happy Valentines all❤️ celebrating heart month on the @cha_nw walk. A fantastic sunny morning ☀️ with patients, families and colleagues. Our CSN team looking totally ace!

Families across Tameside, Saddleworth and the wider North West are joining a growing call for the NHS to formally recognise Congenital Heart Disease (CHD) as a lifelong condition.

Read more: https://saddind.co.uk/north-west-families-urge-nhs-to-recognise-congenital-heart-disease-as-a-lifelong-condition/

Unbelievably #CHD is currently not recognised as a life long condition. The @NwchdN PPV group continue their fantastic work by trying to change this and discussing the vital issue with MPs 👏

💙 #CHDAwarenessWeek
CHD is lifelong. Recognition matters. Support matters. Families matter.

Our PPV group is urging the NHS to recognise Congenital Heart Disease as a lifelong condition.

Read more ⬇️

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Patient and Public Voice

Patient and Public Voice

The patient and public voice refers to the involvement of patients, caregivers, and members of the public in shaping healthcare services and decisions. Their role is to:

Provide insight into how healthcare services affect real people.

Highlight what is important to patients and communities.

Work with healthcare providers, researchers, and policymakers to improve services.

Help create solutions that meet the needs of diverse groups.

Make sure services are patient-centered and transparent.

In short, this ensures that healthcare decisions are informed by the voices of those who use and rely on the services.

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