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CHD Network - Committed to providing high quality care for everyone affected by Congenital Heart Disease in the North West of England, North Wales & Isle of Man

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Avatar The Heart Centre @AlderHey 💙 @heartcentreald1 ·

14 Feb

❤️Happy Valentines all❤️ celebrating heart month on the @cha_nw walk. A fantastic sunny morning ☀️ with patients, families and colleagues. Our CSN team looking totally ace!

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Avatar Saddleworth Indy @saddindependent ·

12 Feb

Families across Tameside, Saddleworth and the wider North West are joining a growing call for the NHS to formally recognise Congenital Heart Disease (CHD) as a lifelong condition.

Read more: https://saddind.co.uk/north-west-families-urge-nhs-to-recognise-congenital-heart-disease-as-a-lifelong-condition/

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Avatar The Heart Centre @AlderHey 💙 @heartcentreald1 ·

13 Feb

Unbelievably #CHD is currently not recognised as a life long condition. The @NwchdN PPV group continue their fantastic work by trying to change this and discussing the vital issue with MPs 👏

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Avatar NWCHDNetwork @nwchdn ·

13 Feb

💙 #CHDAwarenessWeek
CHD is lifelong. Recognition matters. Support matters. Families matter.

Our PPV group is urging the NHS to recognise Congenital Heart Disease as a lifelong condition.

Read more ⬇️

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Patient Stories

Patient Stories

Hear Our Stories

Hearing about patients and families personal stories is incredibly powerful and helps staff to remember that the reason for the service is that there is a patient at the centre of it. It is also helpful for other patients and families to hear that they are not alone and to see other people going through similar journeys.

Stories For The Website

We are looking for patients and families who are willing to be filmed sharing their story. These short clips would be made available here for others to see. If you are interested in sharing your story here please contact the Network by emailing northwestchdnetwork@alderhey.nhs.uk

Patient Stories

Stories to be read out at the CHD Network Board

To find out more about the Network Board click here or scan the QR code below. We have a patient story at the beginning of each Board. The Board meets every three months. This is important to make sure that everyone at the meeting remembers why they are there and that the priority is to improve services for families and patients. The story for the Board needs to be focussed on one element of your care. The story may focus on something that you think needs improvement but it could also be a celebration of fantastic care that you have received as well. You can make recommendations to the Board based on your story. If you are interested in sharing your story to the Board in this way please email our Lead Nurse Linda Griffiths at northwestchdnetwork@alderhey.nhs.uk who will get back in touch with you and will help support you to do this.

SHARE YOUR STORY

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