Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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📢 As we come to the end of Learning Disability week, we would like your help in sharing our survey.
We want to hear what you would like in our easy read heart health information.
Your feedback will help create resources which are clear and accessible for all our patients ❤️

Up next are our amazing PAG chairs Kirsty & Layla speaking on their experience working with the NWNODN and representing the parent voice across the region 🤍 so much amazing work going on within the PAG ensuring parent voice is central to everything we do 🫶🏼 #NWNODN26

❤️AEPC Heart beats for education: Neurodevelopment in CHD
👥Many faces - 🤱👴🏻 lifelong perspective

Learn from experts in the field & join us for tomorrow's webinar!

🗓️ 17 June 2026 | 17:00–18:30 CEST
🔗 Register: https://bit.ly/3OFXBse
#AEPC #neurodevelopment #CHD #YoungAEPC

It’s Learning Disability week ❤️ Are you interested in joining our Congenital Heart Learning Disability Forum? We’d love to hear from people with lived experience, families, carers and supporters. Get in touch to find out more.

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Patient Stories


Hearing about patients and families personal stories is incredibly powerful and helps staff to remember that the reason for the service is that there is a patient at the centre of it. It is also helpful for other patients and families to hear that they are not alone and to see other people going through similar journeys.

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Patient Stories

Stories for the website

Hearing about patients and families personal stories is incredibly powerful and helps staff to remember that the reason for the service is that there is a patient at the centre of it. It is also helpful for other patients and families to hear that they are not alone and to see other people going through similar journeys.
Patient-Stories
Patient Stories

Stories to be read out at the CHD Network Board

To find out more about the Network Board click here. We have a patient story at the beginning of each Board. The Board meets every three months. This is important to make sure that everyone at the meeting remembers why they are there and that the priority is to improve services for families and patients. The story for the Board needs to be focussed on one element of your care. The story may focus on something that you think needs improvement but it could also be a celebration of fantastic care that you have received as well. You can make recommendations to the Board based on your story. If you are interested in sharing your story to the Board in this way please email our Lead Nurse Linda Griffiths at northwestchdnetwork@alderhey.nhs.uk who will get back in touch with you and will help support you to do this.

CHD Network Board Stories

Story 1
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Story 2
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Story 3
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Story 4
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Story 5
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Story 6
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