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CHD Network - Committed to providing high quality care for everyone affected by Congenital Heart Disease in the North West of England, North Wales & Isle of Man

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Avatar Somerville Heart Foundation @heartsomerville ·

2 Jun

From organising fundraisers and moderating our Facebook groups to serving on steering groups and supporting our events, our volunteers make an incredible difference. We would like to thank each and every one of them this week and throughout the year...

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Avatar AEPC - Paediatric and Congenital Cardiology @aepccongenital ·

26 May

Join us for a new ❤️AEPC Heart beats for education - #Pregnancy in complex #CHD

🤰🏼Case presentation
🫀Pregnancy in Fontan
❓Challenging cases & key learnings

🗓️ Join us on 3 June 2026 | 17:00–18:30CEST
🔗 https://bit.ly/3OFXBse

#PediatricCardiology #YoungAEPC #ACHD

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Avatar NWCHDNetwork @nwchdn ·

27 May

Our Network Lead Nurse attended the Liverpool and Sefton Mencap Conference to learn about the I’m In campaign. Some people with CHD also have a learning disability, joining the Learning Disability Register is key in ensuring they receive the adjustments and support they need.

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Avatar Somerville Heart Foundation @heartsomerville ·

22 May

As a CHD patient, you may have been told to avoid certain activities or be concerned about side effects but carefully-chosen exercises suitable for your health conditions, will provide benefits that outweigh the risks.

Read more in our Exercise leaflet:
https://sfhearts.org.uk/leaflets/

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Patient Stories

Hearing about patients and families personal stories is incredibly powerful and helps staff to remember that the reason for the service is that there is a patient at the centre of it. It is also helpful for other patients and families to hear that they are not alone and to see other people going through similar journeys.

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Patient Stories

Stories for the website

Hearing about patients and families personal stories is incredibly powerful and helps staff to remember that the reason for the service is that there is a patient at the centre of it. It is also helpful for other patients and families to hear that they are not alone and to see other people going through similar journeys.

Patient Stories

Stories to be read out at the CHD Network Board

To find out more about the Network Board click here. We have a patient story at the beginning of each Board. The Board meets every three months. This is important to make sure that everyone at the meeting remembers why they are there and that the priority is to improve services for families and patients. The story for the Board needs to be focussed on one element of your care. The story may focus on something that you think needs improvement but it could also be a celebration of fantastic care that you have received as well. You can make recommendations to the Board based on your story. If you are interested in sharing your story to the Board in this way please email our Lead Nurse Linda Griffiths at northwestchdnetwork@alderhey.nhs.uk who will get back in touch with you and will help support you to do this.

CHD Network Board Stories

Story 1

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Story 2

Lorem ipsum dolor sit amet, consectetur adipiscing elit. Praesent lorem sapien, scelerisque finibus tincidunt nec, maximus quis eros. In et risus placerat, egestas arcu at, tempor urna. Donec ultrices lacus orci, et mollis felis maximus et. Pellentesque sit amet nulla eget libero molestie fermentum a ac enim. Donec mollis eros eget imperdiet ornare.

Story 3

Lorem ipsum dolor sit amet, consectetur adipiscing elit. Praesent lorem sapien, scelerisque finibus tincidunt nec, maximus quis eros. In et risus placerat, egestas arcu at, tempor urna. Donec ultrices lacus orci, et mollis felis maximus et. Pellentesque sit amet nulla eget libero molestie fermentum a ac enim. Donec mollis eros eget imperdiet ornare.

Story 4

Lorem ipsum dolor sit amet, consectetur adipiscing elit. Praesent lorem sapien, scelerisque finibus tincidunt nec, maximus quis eros. In et risus placerat, egestas arcu at, tempor urna. Donec ultrices lacus orci, et mollis felis maximus et. Pellentesque sit amet nulla eget libero molestie fermentum a ac enim. Donec mollis eros eget imperdiet ornare.

Story 5

Lorem ipsum dolor sit amet, consectetur adipiscing elit. Praesent lorem sapien, scelerisque finibus tincidunt nec, maximus quis eros. In et risus placerat, egestas arcu at, tempor urna. Donec ultrices lacus orci, et mollis felis maximus et. Pellentesque sit amet nulla eget libero molestie fermentum a ac enim. Donec mollis eros eget imperdiet ornare.

Story 6

Lorem ipsum dolor sit amet, consectetur adipiscing elit. Praesent lorem sapien, scelerisque finibus tincidunt nec, maximus quis eros. In et risus placerat, egestas arcu at, tempor urna. Donec ultrices lacus orci, et mollis felis maximus et. Pellentesque sit amet nulla eget libero molestie fermentum a ac enim. Donec mollis eros eget imperdiet ornare.