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North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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CHD Network - Committed to providing high quality care for everyone affected by Congenital Heart Disease in the North West of England, North Wales & Isle of Man

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Avatar The Heart Centre @AlderHey 💙 @heartcentreald1 ·
14 Feb

❤️Happy Valentines all❤️ celebrating heart month on the @cha_nw walk. A fantastic sunny morning ☀️ with patients, families and colleagues. Our CSN team looking totally ace!

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Avatar Saddleworth Indy @saddindependent ·
12 Feb

Families across Tameside, Saddleworth and the wider North West are joining a growing call for the NHS to formally recognise Congenital Heart Disease (CHD) as a lifelong condition.

Read more: https://saddind.co.uk/north-west-families-urge-nhs-to-recognise-congenital-heart-disease-as-a-lifelong-condition/

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Avatar The Heart Centre @AlderHey 💙 @heartcentreald1 ·
13 Feb

Unbelievably #CHD is currently not recognised as a life long condition. The @NwchdN PPV group continue their fantastic work by trying to change this and discussing the vital issue with MPs 👏

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Avatar NWCHDNetwork @nwchdn ·
13 Feb

💙 #CHDAwarenessWeek
CHD is lifelong. Recognition matters. Support matters. Families matter.

Our PPV group is urging the NHS to recognise Congenital Heart Disease as a lifelong condition.

Read more ⬇️

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Video Resources

Patient and Public Voice Video

This video follows a life journey from finding out about a heart problem before you are born through to old age whilst highlighting the work of the Patient Public Voice (PPV) group in an emotionally engaging, informative manner. It emphasises the essential role the PPV group plays in shaping patient-centred care and connecting patients and families across different regions. This video has closed captions available in English. You can turn them on by clicking the ‘CC’ button in the video player settings.

 

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