Patient and Public Voice Video
This video follows a life journey from finding out about a heart problem before you are born through to old age whilst highlighting the work of the Patient Public Voice (PPV) group in an emotionally engaging, informative manner. It emphasises the essential role the PPV group plays in shaping patient-centred care and connecting patients and families across different regions. This video has closed captions available in English. You can turn them on by clicking the ‘CC’ button in the video player settings.
Jakob’s Story – Celebrating the NHS at 75
Jakob is a young heart patient at Alder Hey Children’s Hospital who regularly visits the hospital for care. In this video for the BBC Press Pack, he shares his experience with the NHS, explaining what it’s like to be a patient and how the NHS has supported him throughout his treatment and takes you to his appointment to his heart doctor.
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David’s Story
David shares his personal journey living with a congenital heart condition and the impact it has had on his life. Through honest reflections, he describes the challenges he has faced — from diagnosis and treatment to ongoing care — and how the support of clinical teams, family, and community has made a meaningful difference. His story highlights resilience, hope, and the importance of awareness and support for others affected by similar conditions.
This inspiring account reminds us why continued research, care and community engagement matter so deeply to families and patients alike.
Learning Disability Open Day at Liverpool Heart & Chest Hospital in June 2024
This video shares highlights from the Learning Disability Open Day. The event brought together patients, families, carers and healthcare staff to talk, learn and share experiences. It focused on improving understanding and support for people with a learning disability and their families.
The day included opportunities to ask questions, hear different perspectives and explore how services can work better together. It shows the importance of listening, inclusion and creating a welcoming space for everyone.
The video highlights how events like this help build stronger connections and improve care for people with learning disabilities.
Lancashire Young People’s Event – 2023
In 2023, young people from across the North West, along with their families, carers, and staff, came together for a fun and inspiring day at Outdoor Elements. The event included climbing, building fires, and other activities that helped everyone have fun, make friends, and build connections.
The day was supported by the Somerville Heart Foundation and highlighted the importance of bringing young people, families, and healthcare teams together in a positive, inclusive environment.
It was a day full of laughter, teamwork, and new friendships.
Support and how to access it
This video is all about the support available for families in the North West of England, North Wales and the Isle of Man when a child has a heart problem, including when you find out about the heart problem before they are born. It explains what help is available and how to access it and includes information about our regional helplines, where you can get in touch with our specialist cardiac children’s nurses.
The day included opportunities to ask questions, hear different perspectives and explore how services can work better together. It shows the importance of listening, inclusion and creating a welcoming space for everyone.
The video highlights how events like this help build stronger connections and improve care for people with learning disabilities.
How to use Play
This video explores how play can help children feel more comfortable when they need to come into hospital. It includes:
Ideas for using play at home
How play is used in hospital to make things a little easier
The special role of our play specialists in supporting children and families
How to talk to your child about their heart problem
This video explores how to talk to your child about their heart problem in a way that is supportive and reassuring. It also highlights the special role of our clinical psychologists in helping both children and families during difficult times.
