Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

Our X Feed

An exciting opportunity has arisen to for an experienced cardiac nurse to come and join the #ACHD nursing team in the #Northwest @LHCHACHD @LHCHFT @NwchdN

Details below👇
https://www.nhsjobs.com/job/UK/Merseyside/Liverpool/Liverpool_Heart_Chest_Hospital_NHS_Foundation_Trust/Adult_Congenital_Heart_Disease_ACHD/Adult_Congenital_Heart_Disease_ACHD-v8219528?_ts=565

Personal Health Passports are a valuable resource for anyone with CHD🥰

There's room to record:
The name of your heart condition
Hospital details
Medication & much more

For a small donation to cover P&P we can send these to ACHD patients - email info@sfhearts.org.uk

This week we're looking at interruption of the aortic arch♥️

Surgery is necessary to repair the aorta and close the VSD.

We are here to support young people and adults born with a heart condition🩵♥️

Heart image credit: Leeds Teaching Hospitals NHS Trust.

📢 New date announcement for the Patient & Public Voice Group information session.
❤️Come along and find out how your voice can be heard and make a difference to paediatric cardiology and ACHD services.
Please click on the link to register:
https://forms.cloud.microsoft/e/yqCBwX6Hft

❤️❤️

News

David

I’m David, a 51-year-old ACHD patient from the Wirral. I’ve been married to Clare for 25 years and we have 3 daughters – one aged 24 and 18 year old twins.

I was born with a hole in the heart (Ventricular Septal Defect) and had my first operation in 1974 aged 15 months. Apart from annual checks up, I lived a normal life until my mid 30’s when I had my second open heart surgery in 2009 at LHCH – Right Ventricular Outflow Tract reconstruction. Post surgery I suffered electrical issues with my heart rhythm (atrial fibrillation) and spent the summer of 2009 in Manchester Royal Infirmary receiving treatment including several ablations and cardio versions.

I started to suffer symptoms of heart failure from 2018 and had my third surgery to replace the tricuspid value and insert a pacemaker in 2021. In September 2024 I was admitted into LHCH and diagnosed with endocarditis and needed another open-heart surgery to replace the tricuspid value and pacemaker. I spent 4 months being treated pre-and post-surgery in LHCH and am grateful for all the help and support provided by the ACHD team.

Balancing working full time as an HR/Communications professional for companies like Unilever and Bank of America and handling my symptoms has not been easy. Following the latest surgery, I’ve made a number of life choices in order to spend more time with my family and focus on my wellbeing. Since my most recent hospital stay I have been looking for a way to help other patients/families given my experiences and this is why I joined the Patient and Public Voice group.

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