Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

Our X Feed

Our private online communities offer support for people affected by CHD:

❤️ Somerville ACHD Patient Group 1 – for CHD patients
❤️ Heart Families – for family, friends and carers

Join or become a member for free: https://sfhearts.org.uk/sign-up/

The CPET measures the function of your heart, lungs and muscles during exercise.

Dr Joy explains why you might be advised to have the test & what it tells healthcare professionals about your CHD 🥰

Watch the recording from our Hearts Together event: https://sfhearts.org.uk/members-area/webinars-and-videos/

📢Calling all neonatal teams across the NW CHD Network. Please join us at our face to face neonatal cardiac study day
Scan the QR code or click on the link to register: https://forms.office.com/Pages/ResponsePage.aspx?id=G888R1c5sE6Cur6KaqH2So_4u0dxYwhNtJ0sZS1kS3BUQVVKN1NFNlI3NlBYOFRVTlcwT0ZQVTFWNC4u

#cardiacbabies ❤️❤️

Can you help in the testing of a newly developed education game about heart failure and associated kidney health? The game is focussed on adult patients or carers of adults.

Please click this link to sign up: https://forms.office.com/e/kzhM3u78Ws

#heartfailure #research

News

David

I’m David, a 51-year-old ACHD patient from the Wirral. I’ve been married to Clare for 25 years and we have 3 daughters – one aged 24 and 18 year old twins.

I was born with a hole in the heart (Ventricular Septal Defect) and had my first operation in 1974 aged 15 months. Apart from annual checks up, I lived a normal life until my mid 30’s when I had my second open heart surgery in 2009 at LHCH – Right Ventricular Outflow Tract reconstruction. Post surgery I suffered electrical issues with my heart rhythm (atrial fibrillation) and spent the summer of 2009 in Manchester Royal Infirmary receiving treatment including several ablations and cardio versions.

I started to suffer symptoms of heart failure from 2018 and had my third surgery to replace the tricuspid value and insert a pacemaker in 2021. In September 2024 I was admitted into LHCH and diagnosed with endocarditis and needed another open-heart surgery to replace the tricuspid value and pacemaker. I spent 4 months being treated pre-and post-surgery in LHCH and am grateful for all the help and support provided by the ACHD team.

Balancing working full time as an HR/Communications professional for companies like Unilever and Bank of America and handling my symptoms has not been easy. Following the latest surgery, I’ve made a number of life choices in order to spend more time with my family and focus on my wellbeing. Since my most recent hospital stay I have been looking for a way to help other patients/families given my experiences and this is why I joined the Patient and Public Voice group.

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