Hello I’m Heather and I am from Cumbria. The PPV group has given me the opportunity to shine a light on an amazing group of congenital heart patients – those with learning difficulties. My brother, Alistair, who was born with Down’s Syndrome and was diagnosed with congenital heart disease was truly inspirational. He sadly passed away last December but has left a huge legacy, one that involves ensuring all patients have a platform and a voice.
“The Learning Disability Forum – an off shoot from the PPV group – provides a wonderful opportunity for patients with a learning disability alongside their families and carers to share experiences. Their thoughts and opinions are vital if we are to continue to improve NHS services for all.