Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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Our private online communities offer support for people affected by CHD:

❤️ Somerville ACHD Patient Group 1 – for CHD patients
❤️ Heart Families – for family, friends and carers

Join or become a member for free: https://sfhearts.org.uk/sign-up/

The CPET measures the function of your heart, lungs and muscles during exercise.

Dr Joy explains why you might be advised to have the test & what it tells healthcare professionals about your CHD 🥰

Watch the recording from our Hearts Together event: https://sfhearts.org.uk/members-area/webinars-and-videos/

📢Calling all neonatal teams across the NW CHD Network. Please join us at our face to face neonatal cardiac study day
Scan the QR code or click on the link to register: https://forms.office.com/Pages/ResponsePage.aspx?id=G888R1c5sE6Cur6KaqH2So_4u0dxYwhNtJ0sZS1kS3BUQVVKN1NFNlI3NlBYOFRVTlcwT0ZQVTFWNC4u

#cardiacbabies ❤️❤️

Can you help in the testing of a newly developed education game about heart failure and associated kidney health? The game is focussed on adult patients or carers of adults.

Please click this link to sign up: https://forms.office.com/e/kzhM3u78Ws

#heartfailure #research

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News

Patrick

  • The purpose of this information
    Patrick
  • Who this information is for
  • Date Published

I am Patrick. I was born in 1982 with Tricuspid Atresia and had my Fontan procedure at Myrtle Street, Liverpool in 1988. A few years ago, I was fortunate to meet my surgeon, Roxanne McKay, at a NW ACHD convention in Liverpool.

In early 2024, while preparing to join the PPV team and completing my Level 4 Counsellor training, I experienced a stroke that affected my balance and speech. After a year of recovery, I restarted my Counselling course in February 2025 with a first-year group, and returned to placement that summer after an 18‑month break. I am now nearly halfway through my placement, approaching 50 hours. I reapplied to join the PPV Group in 2025 and am pleased to be part of the team.

Regarding my cardiac health, I have had several pacemakers and ablations, with many hospital stays at Liverpool Heart & Chest Hospital. I lived with AF since my teens but have been free of it since my last ablation in May 2022. My heart health has been stable for the past couple of years, though I will eventually need a transplant. I currently see my cardiologist at Manchester Royal Infirmary and have annual online appointments with the transplant team at The Freeman, Newcastle.

I am preparing a presentation on CHD and mental health for my Counselling course in January. After a challenging year, I look forward to a more positive future.

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