Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

Our X Feed

An exciting opportunity has arisen to for an experienced cardiac nurse to come and join the #ACHD nursing team in the #Northwest @LHCHACHD @LHCHFT @NwchdN

Details below👇
https://www.nhsjobs.com/job/UK/Merseyside/Liverpool/Liverpool_Heart_Chest_Hospital_NHS_Foundation_Trust/Adult_Congenital_Heart_Disease_ACHD/Adult_Congenital_Heart_Disease_ACHD-v8219528?_ts=565

Personal Health Passports are a valuable resource for anyone with CHD🥰

There's room to record:
The name of your heart condition
Hospital details
Medication & much more

For a small donation to cover P&P we can send these to ACHD patients - email info@sfhearts.org.uk

This week we're looking at interruption of the aortic arch♥️

Surgery is necessary to repair the aorta and close the VSD.

We are here to support young people and adults born with a heart condition🩵♥️

Heart image credit: Leeds Teaching Hospitals NHS Trust.

📢 New date announcement for the Patient & Public Voice Group information session.
❤️Come along and find out how your voice can be heard and make a difference to paediatric cardiology and ACHD services.
Please click on the link to register:
https://forms.cloud.microsoft/e/yqCBwX6Hft

❤️❤️

News

Patrick

I am Patrick. I was born in 1982 with Tricuspid Atresia and had my Fontan procedure at Myrtle Street, Liverpool in 1988. A few years ago, I was fortunate to meet my surgeon, Roxanne McKay, at a NW ACHD convention in Liverpool.

In early 2024, while preparing to join the PPV team and completing my Level 4 Counsellor training, I experienced a stroke that affected my balance and speech. After a year of recovery, I restarted my Counselling course in February 2025 with a first-year group, and returned to placement that summer after an 18‑month break. I am now nearly halfway through my placement, approaching 50 hours. I reapplied to join the PPV Group in 2025 and am pleased to be part of the team.

Regarding my cardiac health, I have had several pacemakers and ablations, with many hospital stays at Liverpool Heart & Chest Hospital. I lived with AF since my teens but have been free of it since my last ablation in May 2022. My heart health has been stable for the past couple of years, though I will eventually need a transplant. I currently see my cardiologist at Manchester Royal Infirmary and have annual online appointments with the transplant team at The Freeman, Newcastle.

I am preparing a presentation on CHD and mental health for my Counselling course in January. After a challenging year, I look forward to a more positive future.

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