Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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📢 Are you interested in joining the NW CHD Network Patient &Public Voice Group or just want to know more about the excellent work they do? Join our informal information session via Teams on 09/09/26 #chd #ACHD #paediatriccardiology ❤️❤️❤️

https://www.northwestchdnetwork.nhs.uk/all-about-our-patient-and-public-voice-group-ppv/

If you become our supporter on easyfundraising, you'll raise free funds for Somerville Heart Foundation simply by shopping online.

It's easy to set up - visit the website or download the app and choose Somerville Heart Foundation.

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Empowering hearts globally (EHG) launches their first 'Fundamentals in pediatric & congenital cardiology' boot camp!
A comprehensive 4-week online course designed to build practical knowledge & clinical confidence in pediatric cardiology. 
Find out more: https://empoweringheartsglobally.org/2026-fundamentals-course/

Our private online communities offer support for people affected by CHD:

❤️ Somerville ACHD Patient Group 1 – for CHD patients
❤️ Heart Families – for family, friends and carers

Join or become a member for free: https://sfhearts.org.uk/sign-up/

News

Patrick

I am Patrick. I was born in 1982 with Tricuspid Atresia and had my Fontan procedure at Myrtle Street, Liverpool in 1988. A few years ago, I was fortunate to meet my surgeon, Roxanne McKay, at a NW ACHD convention in Liverpool.

In early 2024, while preparing to join the PPV team and completing my Level 4 Counsellor training, I experienced a stroke that affected my balance and speech. After a year of recovery, I restarted my Counselling course in February 2025 with a first-year group, and returned to placement that summer after an 18‑month break. I am now nearly halfway through my placement, approaching 50 hours. I reapplied to join the PPV Group in 2025 and am pleased to be part of the team.

Regarding my cardiac health, I have had several pacemakers and ablations, with many hospital stays at Liverpool Heart & Chest Hospital. I lived with AF since my teens but have been free of it since my last ablation in May 2022. My heart health has been stable for the past couple of years, though I will eventually need a transplant. I currently see my cardiologist at Manchester Royal Infirmary and have annual online appointments with the transplant team at The Freeman, Newcastle.

I am preparing a presentation on CHD and mental health for my Counselling course in January. After a challenging year, I look forward to a more positive future.

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