Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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Our private online communities offer support for people affected by CHD:

❤️ Somerville ACHD Patient Group 1 – for CHD patients
❤️ Heart Families – for family, friends and carers

Join or become a member for free: https://sfhearts.org.uk/sign-up/

The CPET measures the function of your heart, lungs and muscles during exercise.

Dr Joy explains why you might be advised to have the test & what it tells healthcare professionals about your CHD 🥰

Watch the recording from our Hearts Together event: https://sfhearts.org.uk/members-area/webinars-and-videos/

📢Calling all neonatal teams across the NW CHD Network. Please join us at our face to face neonatal cardiac study day
Scan the QR code or click on the link to register: https://forms.office.com/Pages/ResponsePage.aspx?id=G888R1c5sE6Cur6KaqH2So_4u0dxYwhNtJ0sZS1kS3BUQVVKN1NFNlI3NlBYOFRVTlcwT0ZQVTFWNC4u

#cardiacbabies ❤️❤️

Can you help in the testing of a newly developed education game about heart failure and associated kidney health? The game is focussed on adult patients or carers of adults.

Please click this link to sign up: https://forms.office.com/e/kzhM3u78Ws

#heartfailure #research

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Angelique

  • The purpose of this information
    Angelique
  • Who this information is for
  • Date Published

My name is Angelique, I am from Liverpool, married and have 2 children. My daughter Aurelia was born with a single ventricle in 2014 and my warrior princess has had multiple heart operations, now giving her a Fontan circulation. She is a beautifully kind hearted, empathetic and resilient girl and is such an inspiration to us all.

I myself became a cardiothoracic nurse after my daughters diagnosis and I now volunteer for the PPV group so that I can help to support other families through their own difficult journey.

I am passionate about ensuring services are accessible for all and that the standards of care for this specialist group of patients and their families remains to the highest standard possible.

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