Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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Our private online communities offer support for people affected by CHD:

❤️ Somerville ACHD Patient Group 1 – for CHD patients
❤️ Heart Families – for family, friends and carers

Join or become a member for free: https://sfhearts.org.uk/sign-up/

The CPET measures the function of your heart, lungs and muscles during exercise.

Dr Joy explains why you might be advised to have the test & what it tells healthcare professionals about your CHD 🥰

Watch the recording from our Hearts Together event: https://sfhearts.org.uk/members-area/webinars-and-videos/

📢Calling all neonatal teams across the NW CHD Network. Please join us at our face to face neonatal cardiac study day
Scan the QR code or click on the link to register: https://forms.office.com/Pages/ResponsePage.aspx?id=G888R1c5sE6Cur6KaqH2So_4u0dxYwhNtJ0sZS1kS3BUQVVKN1NFNlI3NlBYOFRVTlcwT0ZQVTFWNC4u

#cardiacbabies ❤️❤️

Can you help in the testing of a newly developed education game about heart failure and associated kidney health? The game is focussed on adult patients or carers of adults.

Please click this link to sign up: https://forms.office.com/e/kzhM3u78Ws

#heartfailure #research

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Janet

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    Janet
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I am Janet  a geriatric congenital heart patient. I am married with two children and three grandchildren. I had my first surgery aged 11 at Myrtle Street hospital in Liverpool.

I trained as a cardiac and respiratory technician at the cardio-thoracic surgical centre, now known as Liverpool Heart and Chest, and worked there for six years. I moved to Chester Hospitals managing a very busy cardiac, respiratory, and vascular department. I was an active member of the British Heart Foundation in Chester for over thirty years and was vice chair or chair for many years. I set up a charitable fund in the hospital for the purchase of medical equipment and was heavily involved in the campaign to raise £500,000 to build a dedicated coronary care ward for Chester.

I took early retirement, due to differences of opinions with higher management but was then offered a consultancy post with the cardiac network initially to coordinate the training and degree courses of all technicians in the North West. I was then asked to assist the network with the ACHD service that had recently been set up in Manchester. This work was mainly on policies, patient pathways and looking at ways to find patients who had been lost to follow up.

I retired again in 2010 and had further surgery in London the following year. I think my four-year term runs out in March next year, so you won’t have to put up with me for long.

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