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North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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Our private online communities offer support for people affected by CHD:

❤️ Somerville ACHD Patient Group 1 – for CHD patients
❤️ Heart Families – for family, friends and carers

Join or become a member for free: https://sfhearts.org.uk/sign-up/

The CPET measures the function of your heart, lungs and muscles during exercise.

Dr Joy explains why you might be advised to have the test & what it tells healthcare professionals about your CHD 🥰

Watch the recording from our Hearts Together event: https://sfhearts.org.uk/members-area/webinars-and-videos/

📢Calling all neonatal teams across the NW CHD Network. Please join us at our face to face neonatal cardiac study day
Scan the QR code or click on the link to register: https://forms.office.com/Pages/ResponsePage.aspx?id=G888R1c5sE6Cur6KaqH2So_4u0dxYwhNtJ0sZS1kS3BUQVVKN1NFNlI3NlBYOFRVTlcwT0ZQVTFWNC4u

#cardiacbabies ❤️❤️

Can you help in the testing of a newly developed education game about heart failure and associated kidney health? The game is focussed on adult patients or carers of adults.

Please click this link to sign up: https://forms.office.com/e/kzhM3u78Ws

#heartfailure #research

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Janet

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    Janet
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Hello, I am Janet from Cheshire. In 1964 I underwent open heart cardiac surgery for an ASD at Myrtle Street in Liverpool.

Having always after that being interested in hearts and hospitals I decided to go into a career in cardiology. I trained as a basic grade technician, with more experience became a senior technician at Warrington Hospital. I then transferred to Chester where I began to move into the Echocardiography side of the career. I became manager of the Cardio- respiratory & Vascular department at COCH. After retirement from this post, I began locum work in Echo. In 2012      I worked in Sydney Australia for 8 months in a private cardiology clinic.

On my return to the UK, I continued locum work until the Covid pandemic after which I retired

In 2014 my son also underwent open heart surgery for ASD this was only discovered when he was 26 years of age. He also had a pacemaker implanted 3 weeks later. During this time as my son and I had very similar ECGs and history we had genetic testing for Holt Oram syndrome which we both have. My daughter was also tested, and she does not have the gene for this. My son’s pacemaker was removed 3 years later, and he continues to do well. He now has 2 children who are well.

In 2018 I had a pacemaker implanted with no issues. I historically have episodes of Atrial Flutter and bradycardia.

The PPV group is important as patients need support and information which I hope this group can provide in different ways. Most of us on the group have cardiac history or have a family member who has therefore we have first-hand knowledge and experience which we are willing to impart. I really want this group to make a difference to people with cardiac problems which I want to be a part of.

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