Hello, I’m Claire and I’m a PPV Group Rep. I joined at the very beginning 4 years ago and I love it so much, I’m staying on an extra year! The reason I became involved in the PPV is because of my amazing 9-year-old son, Jake, who was born with Cardiomyopathy and is 3 years post Heart Transplant – and of course all the other amazing children and families I have met along the way!
I work as a Sales Manager for an IT Distributor as my Day Job, so I am not medical, but in my \”Spare\” Time I am the CEO of Team 1C, which is a charity I founded 2 years ago, with other Cardiac Parents. Our Charity is dedicated to supporting Cardiac families here in the North West and our less fortunate Cardiac Cousins in the developing world who do not have access to the NHS.
I’m really passionate about getting the best possible outcomes for our families, not just from a surgical and clinical point of view, but holistically too. My particular interests are in supporting families who transfer to Transplant Centres outside of the North West and ensuring that Parents/Carers/ Siblings are listened to and supported. I would also like to see more focus on Rhythm and Muscle patients in the future.
It’s an honour to be a PPV, I have loved every minute and I’m really proud of everything we have achieved.