Hello, I am Anne from Central Manchester. I’ve been involved with the congenital heart community since my daughter Rachel was born. I really needed to meet other heart families in a time before the internet and social media and was relieved to find the Children’s Heart Association. They were friendly and crazy with slightly older children, and this gave me hope of a future.
Rachel is now 33 and has a 1yr old so we have experienced the children’s service, moved up to adults, and also experienced congenital services for pregnancy for her – although this was in Leeds.
I am part of the PPV as I want the service in the North West to be the best it can be, and as I am chair of the Children’s Heart Association, I want to make sure we have good links so we can care for families in the best way possible.