Hello, my name is Heather, and I was born with Tetralogy of Fallot. I had my original heart op in 1979 at the old Mrytle Street Children’s Hospital in Liverpool and as an adult I have had a pulmonary valve replacement and an ICD fitted.
I’ve lived in different parts of the North West including Lancashire and Merseyside, and am currently based in South Cumbria. I work in tourism marketing but have also done a variety of different journalism and communications roles, hopefully skills which I can bring to the PPV group.
I put myself forward as a volunteer for the PPV group in early 2024 because I have benefited directly from congenital heart services throughout my life, and I wanted to do something positive for fellow patients and their families.
The group came to my attention after I attended a patient information day in 2023. I think it’s a really important way to put patients’ needs and opinions at the forefront of care for people – of all ages – with congenital heart problems.