Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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📢 calling all patients, families and carers of a child with a heart condition or adult Congenital Heart Disease 📢come and meet your patient reps at one of our drop-in sessions # Keeping patients at the heart of every conversation and decision #CHD # ACHD # PPV

From organising fundraisers and moderating our Facebook groups to serving on steering groups and supporting our events, our volunteers make an incredible difference. We would like to thank each and every one of them this week and throughout the year...

Join us for a new ❤️AEPC Heart beats for education - #Pregnancy in complex #CHD

🤰🏼Case presentation
🫀Pregnancy in Fontan
❓Challenging cases & key learnings

🗓️ Join us on 3 June 2026 | 17:00–18:30CEST
🔗 https://bit.ly/3OFXBse

#PediatricCardiology #YoungAEPC #ACHD

Our Network Lead Nurse attended the Liverpool and Sefton Mencap Conference to learn about the I’m In campaign. Some people with CHD also have a learning disability, joining the Learning Disability Register is key in ensuring they receive the adjustments and support they need.

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News

New! Practice Breathing for an MRI Scan

Hello! This is Alistair. Alistair is at home. He is practicing how to hold his breath. During a heart MRI scan, you may be asked to hold your breath. This helps the scanner take clear pictures of your heart. This video will help you practice. It uses simple language.

You can practise this a few times. Practising at home can help you feel more ready and relaxed for your scan. Remember, the hospital staff will help you. You can always ask questions if you are unsure. We hope this video helps you feel confident and ready for your MRI scan.

Click here to watch the video.

Click here to watch the video with Makaton.

Extra Information and Support You can download the Makaton Prompt Cards here: https://www.northwestchdnetwork.nhs.u…

Thank you to: Alistair and his family The Learning Disability Forum and the Congenital Heart Disease Network https://www.northwestchdnetwork.nhs.u…

The ACHD Team at Liverpool Heart and Chest Hospital The Makaton Charity The Somerville Heart Foundation Corrine Lloyd, Makaton Tutor Quentin, videographer from https://kewsvids.com/ Makaton symbols are copyright © 2026 The Makaton Charity and are used with permission (Makaton.org).

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