Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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📢calling all patients, families and carers of a child with a heart condition or adult Congenital Heart Disease 📢 come and meet your patient reps at one of our remaining drop-in sessions #Keeping patients at the heart of every conversation and decision #CHD # ACHD #PPV

📢 As we come to the end of Learning Disability week, we would like your help in sharing our survey.
We want to hear what you would like in our easy read heart health information.
Your feedback will help create resources which are clear and accessible for all our patients ❤️

Up next are our amazing PAG chairs Kirsty & Layla speaking on their experience working with the NWNODN and representing the parent voice across the region 🤍 so much amazing work going on within the PAG ensuring parent voice is central to everything we do 🫶🏼 #NWNODN26

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News

New! Practice Breathing for an MRI Scan

Hello! This is Alistair. Alistair is at home. He is practicing how to hold his breath. During a heart MRI scan, you may be asked to hold your breath. This helps the scanner take clear pictures of your heart. This video will help you practice. It uses simple language.

You can practise this a few times. Practising at home can help you feel more ready and relaxed for your scan. Remember, the hospital staff will help you. You can always ask questions if you are unsure. We hope this video helps you feel confident and ready for your MRI scan.

Click here to watch the video.

Click here to watch the video with Makaton.

Extra Information and Support You can download the Makaton Prompt Cards here: https://www.northwestchdnetwork.nhs.u…

Thank you to: Alistair and his family The Learning Disability Forum and the Congenital Heart Disease Network https://www.northwestchdnetwork.nhs.u…

The ACHD Team at Liverpool Heart and Chest Hospital The Makaton Charity The Somerville Heart Foundation Corrine Lloyd, Makaton Tutor Quentin, videographer from https://kewsvids.com/ Makaton symbols are copyright © 2026 The Makaton Charity and are used with permission (Makaton.org).

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