Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

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From organising fundraisers and moderating our Facebook groups to serving on steering groups and supporting our events, our volunteers make an incredible difference. We would like to thank each and every one of them this week and throughout the year...

Join us for a new ❤️AEPC Heart beats for education - #Pregnancy in complex #CHD

🤰🏼Case presentation
🫀Pregnancy in Fontan
❓Challenging cases & key learnings

🗓️ Join us on 3 June 2026 | 17:00–18:30CEST
🔗 https://bit.ly/3OFXBse

#PediatricCardiology #YoungAEPC #ACHD

Our Network Lead Nurse attended the Liverpool and Sefton Mencap Conference to learn about the I’m In campaign. Some people with CHD also have a learning disability, joining the Learning Disability Register is key in ensuring they receive the adjustments and support they need.

As a CHD patient, you may have been told to avoid certain activities or be concerned about side effects but carefully-chosen exercises suitable for your health conditions, will provide benefits that outweigh the risks.

Read more in our Exercise leaflet:
https://sfhearts.org.uk/leaflets/

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PPV Informal Drop-in Sessions

Join us for a Patient & Public Drop-In events in June, July & September

It’s a relaxed space to chat, ask questions, share your views, and connect with others.  Share your ideas and stories to improve patient experience.

Saturday 13th June 2026 – 4.00pm – 5.00pm
Thursday 9th July 2026 – 11.00am – 12.00noon
Wednesday 9th September 2026 – 7.00pm-8.00pm

Register your interest to attend by either scanning the QR code above or clicking the button below.

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